Oxycodone pain side effects.

Thanks Carly, part of the reason why I have been referred to the Pain Clinic. Even though it was decided back in April but they have only processed the referral. 18 weeks. To wait for the first assessment. I just can't do this on my own. The pain is unbelievable incl hot/cold sweats if I don't take the liquid. I'm on MR but now need liquid to 'top up' during the day. However for the past 3 nights the pain is too much whilst in bed at about 3.30am. I'm now taking the liquid drug in the night! It's a mess. Emotionally and physically wrecked. But to look at me no one would know.

PS. My GP has said its 'outside his field of expertise'. So bounced back into hospital care. They in turn have passed me in to another pain team.

MR tablets am and pm

Liquid top up

I'm so sorry to hear that no exactly what your goin through I was the same pain unbearable used to drink it literally from the bottle and used to make me so sick where I was overdosing what I did was weened myself off bit by bit takin a lower dose everyday and takin different pain meds in top to try alternative pain reliefs it took me a while but I got there in the end you will too you just gotta find the right remedy that's gonna suit y best hope this helps all the best x

That's one of the problems. I don't know what other over the counter alternatives I could use to try and combat the withdrawal effects. Allowing me to wean off the drug. I realise now it's out of control. Having to wait 18 weeks for even an assessment is just too long to wait.

It is a very long wait but you will have to go through the withdrawal symptoms regardless as that's part of comin off them I took co codamol and lorazepam to try and relax me as much as it could but I'd say I was over the worst of it within 5 days if you would like to private message me in my email I could help u as much as I could

Hi Stephanie

It's horrible, trust me I know. I was put on two nerve pain medications, oxycodone MR and liquid and clonazepam after an open hip surgery and sciatic nerve release which resulted on nerve damage. I was in 10/10 pain post op and ended up on huge amounts of morphine with very little relief. Not surprisingly I collapsed at home on discharge a month later and had be given reversal. Had seizures at home and almost all my medications were cancelled. I went through horrid withdrawals I wouldn't wish on anyone. Withdrawals are horrible but it can be done. I've also been through weaning and withdrawals for the nerve pain medications, patches, endone (after another op) and codiene, there's more but I forget them all. I've had so many ops and procedures I've lost count. My story is a little different cause I was forced to withdraw in hospital and ended up sick. My weight dropped to 38kgs.

I'd advise getting them to start a weaning program and replace your pain relief appropriately depending on what's wrong. Such as getting a nerve block etc. I really feel for ppl who are prescribed highly addictive pills who end up in this position. My road was very hard and I had to be strong as my pain was horrific as during all this weaning and withdrawal. It turns out my hip was partially dislocating (undiagnosed) as well. So was beside my self with pain but I didn't want to stay on it. It's been over the last four years so quite complicated as I was off one, then got worse, had to start something else, had surgery, off that one, got worse etch Up and down with ops but now off everything except 45 mgs of codeine a day which I'm weaning as I still need something done to my ankle, so still in pain. I've been very depressed as I was alone in London for most of this.

I really hope it starts getting better. I know how you feel, I'm not just saying that. It's horrendous. Just try to keep going and get them wean so it's safe and try various other ways to deal with the pain depending on what's wrong. Take Care. Mel.

By the way, if you're really struggling, there's a program I was told to try called 'Living Well with pain and illness.' You can buy it online. I was skeptical but it did help me a bit. I still listen to the CD because I have pain ALL THE TIME in my back, both hips and ankle. Might help you? Listening to your story takes me back 😢 and really hope they find you a solution soon. Mel

Hi. Thank you for sharing your very personal story. I was initially prescribed Oxycodone to help me get off Tramadol post shoulder surgery pain. I then weaned off slowly and painfully. Only for my surgeon to pump me full of the stuff post op again (change of op, long story, no consent). Collapsed on the way home. Told it was all my fault as I should have told them I'm on too much!! Tried to come off. Collapsed again damaged my knee more pain more pain killers to get me through to hospital appointment. Then referred to pain clinic. Even though they said they couldn't help. Referred to another pain clinic (no given reason of what they can do that they can't) meanwhile in the real world life carries on. It's been a long hard year since my knee was damaged. Just need help. Can't do it on my own as I don't know how. That's what I asked the pain team to help me. Nothing. Off work.

It's ok. I try to help ppl in this position because I've been through it all. Resp arrests, reversals, seizures, the horrid medication side effects, bleeds, op after op after op. ICU admissions etc. I remember being given a pot of pills of 9 pain killers etc in hospital when they were trying to figure out my hip. Went hypertensive, hypotensive etc.

You collapsed because of the pills side effects? Have they done a scan on your knee to see if there's something that's needs to be done?

I don't really understand why they'd replace tramadol with oxycodone to be honey. Seems like a step backwards. I was told I didn't need another hip surgery for 3 yrs until finally a wonderful surgeon figured it out after I was bed bound for 8 months and realized my hip was partially dislocating. Prior to that I was told some pretty bad stuff. I know they it's all your fault comments.

Sorry didn't explain well. Fell/collapsed at home due to pain out the bath (yup not a stitch on). A and E. Torn hamstring. Couldn't walk for a month went private torn Mescius carriage. Op just 7days after major shoulder op. Recovered well from knee op. 5 months later out if the blue. Experienced a loud 'pop' from the knee shooting pain. Scan shows a tear but won't do anything surgical so I've been left for the last year nearly to the day. So now painful right arm busted left knee. But it's taken them a year to send a referral. Just can't take it anymore. Don't know how severe the base line of my pain is from the actual injury to knee and arm or what is opiate pain. Except the bone pain. Ouch is polite but beyond words to describe it. Stuck at home all day everyday except my little people after school. I just need someone to say take ........ For so many days then ........ etc to get me off the ****** stuff. The prospect of having to wait until next year with yet another ruined winter is just too much. 😢 Hoping some kind soul could step in where hospital have failed.

Ps. That's the abridged version. Hopefully makes some sense.

Oh poor thing! Do they need to do something for the new tear? A anthem scan to see if year is worse? Maybe a steroid injection or something? Yeah they will help you wean. Just tell them you want to get off it. I have found pain ppl want to throw pills at me and I keep saying no. Just be firm and say what you need. Yes far too long for a referral.

*another *tear

They won't inject ( well one doc would but consultant refused) due to previous adverse reaction. Don't seem to want to help claiming 'can't do anything for you' but we will refer you to another clinic. Still haven't answered my letter dated 4th July what this new clinic can do that they can't or won't do. It's only fit an assessment as well. So don't know IF they can help. It's a long way to travel as well.

They have never explained what the 'pop' was and the pain. Not that I want another op after the last time. Just need help can't work until I do.

My advice would be to take a second person with you to all appointments. Better in numbers. Record the conversations if they aren't helping you wean off the morphine, just say can I record as the morphine makes me drowsy and I'll listen to it later to make sure I understand what you've said. 

See another GP. I had the same thing re my GP dumping me cause he was out of his depth. At a minimum your knee surgeon should be able to help you wean off the medication as that's the last surgery you had. If you're still in pain with the tear, you need to ask outright why he won't do anything. They can't just say they won't help with no proper explanation. 

If if still no luck and no one will help you, go to a hospital and say you want to be weaned and no one will help you. Don't let them fob you off. 

By by the way, did they offerr a rehab hospital after your shoulder surgery? 

Unfortunately I'm stuck with the hospital I have because of where I live. The referral hospital is quite some distance (flight and train) as far a post op shoulder. I was sent home via the airport. Because of delay discharge my physio at home had gone on holiday. It was 5 weeks before any appointments. After 2 said he couldn't do anything as it just created more pain (flare up). So nothing. My referral to the new pain clinic will be in my own as they wont pay travel for another companion. I truly believe I'm going to be on a DIY programme. If I can get the advice from somewhere.

Poor thing! When is the appointment? I know said you had to wait 18 weeks.

No date given. The secretary from the local hospital called the referral hospital and they came back with a waiting list of 18 weeks! Local hospital have been rather vague in admitting when they actually sent the paperwork. Probably not this year!

Oh! I thought you we're seeing them soon! The first pain ppl said they can't help right? Your GP said the same thing? Is this the second pain management time you are going to see? I'd be seeing another GP and saying wrtoe me a weaning program! 

Yup. 2nd pain management team. Can't get an answer from the 1st team to tell me what the new team can offer that they can't! To be fair on my GP. Analgesia is not his specialist subject and certainly not when trying to wean off substances that were prescribed by the hospital. Plus it is costly to keep going to the GP.

*team *write. I'd also be seeing another knee specialist to double check re any intervention that might be able to be done. 

There isn't one! Not one I have access to. 😕

Oh! Sorry, I didn't realise you couldn't see another GP 😧, yeah gee it's so hard for you! I don't know what to tell you. Sorry, did you say the knee surgeon is too far away? Personally, I think the knee surgeon should be the one taking the responsibility for your weaning and knee given he/she is the one that last operated on you and you've had an injury since. 

The knee surgeon is local. he was the one that referred me to the pain team as there was no surgical option for him so not an Othopeadic matter. a wait of 8 weeks to see them. For them to then gave a 'consultation' with the Ortho team which took another 8 weeks. To then decide that the local pain team would refer me to another pain team. 10 weeks before they sent the referral letter. I'm now on an 18 week waiting list. You honestly could not make it up. Hence why I felt compelled to ask for help on this public forum. I'm beyond despair with the local health service.

Oh ok, makes sense. That's terrible! And ridiculous! Did the orthopeadic pain team tell you why the couldn't help? 

Nope, I did ask in a letter,(4th July) still waiting for a reply.