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Hello, I have just been to see my consultant and respiratory nurse as, having bought and used a finger pulse oxymeter, I noticed my oxygen levels were very often below the minimum recommended level (90% saturation) :blue:
I am told that it is unusual for people with COPD caused by emphysema (which is what I have) to require oxygen and that, if they do, it is usually at a lowish level and sometimes for short periods of time. Otherwise, long-term oxygen therapy is more generally used for people who have COPD because of things like cystic fibrosis. So, as I am told I am not normal (:weird: which my family would confirm!).
I am going to continue to use my oxygen at the prescribed level for now (1 litre per minute) whilst wearing a special finger pulse oxymeter for a 24 hour period, which will record my blood/oxygen saturation and pulse rate every six minutes. I will also keep a diary to record what I am doing so that they can match these up and see what is causing my saturation levels to drop and by how much. Once this has been analysed I will repeat the process at a higher setting (maybe several times at different settings) until an optimum level is found. A pain in the butt :roll:, but it should help them to set my oxygen at the correct level eventually. Also, if I am not fully saturated during the night, this would account for the swollen ankles and feet within an hour or so of getting out of bed.
The good news is, once this is sorted out, I should be able to return to work; the bad news is that I shall probably have to be redeployed as there are several reasons why I cannot return to my old job. If anyone has a similar experience or any thoughts on the matter I would appreciate hearing from you.
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