P.Es and upper back chest pain

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Hi Everyone I was diagnosed with multiple bilateral clots and lung infarction about 6 weeks ago. I was injecting Fragmin twice a day for about 2 weeks and then put on Apixaban 5mg twice a day. When I was diagnosed i had upper back and chest pain that seemed muscular because it was painful to touch and twist etc. The back pain went and chest was much better but the last 2 days it has come back and i'm worried I may have another clot. Has anyone else had this pain that comes and goes? I have had scans galore ( abdomen/pelvis, kidney/bladder/legs ) and loads of blood test everything had come back okay but they think i may have a blood clotting disorder so i am waiting to see a haematologist. Just feeling a bit worried and concerned, any advice would be really appreciated. x

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  • Posted

    I'm so sorry to hear that. I used to have the pain in my upper back and chest too, now it was just my chest, any movement would hurt, especially trying to lay down, turn anything. I also thought mine was a muscular problem, maybe I pulled a muscle or something. I'm on that medication as well, eliquis! My aches are getting better I was diagnosed 8/7. And I tell you my chest feel way better, it hurt led when I inhaled. It still hurts sometime when I try and lay on my right side, and bend over. But it's getting better, bc before I could not do it at all. But I hope you're not forming any more. I'm also waiting for my hematology appointment. I pray every thing goes well for you. Once these blood clots are gone, they stay away. No more forming or anything. 

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  • Posted

    Hi I was diagnosed this time last year. I am 80% recovered. But every so often I get the pain/ache in lower back. and last night I did have heavy feeling in my chest. But otherwise I feel so much better. I am also on Apixaban for life. This is such a serious condition just take each day at a time. Good luck. 😊

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  • Posted

    I was on apixaban for 6 nonths because i had bilateral pes and i had the same problem so it might just be the apixaban.
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  • Posted

    Hello - I have the same exact issue however mine was just diagnosed in late August.  The back pain, chest xrays (thought I broke a rib) and shortness of breath all from multiple PE's and infarction.  I have been very nervous as I'm short of breath still, sometimes (like today) from no activity at all - just sitting at my desk working.  I guess I have a long way to go! 

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  • Posted

    Hi,

     Obviously your GP knows about this, perhaps a change in medication is needed ? They all have their fair share of side effects these drugs ( NOAC's ) from very unpleasant to down right dangerous.

    I was on Xarelto,  about a week later I started getting my angina chest pain, it took me a few days to a week to click on so I did an experiment, because I was on the once a day dose after initial Xarelto treatment. After taking the Xarelto in the morning with my breakfast, 1 to 2 hours later my angina pain would come on, so I changed my morning dose to the evening, no chest pain during the day, after taking the evening dose sure enough 1 - 2 hours later angina chest pain. Because the chest pain was quite moderate to severe it had me in emergency nearly every day, A cardiology consultant was sent down to see me and I had this discussion with him, he said no , not possible, he was a young doctor and one that thought he was smart, he as a doctor was right and me as patient was wrong, you know that type of doctor. I had to remind him " who's body is it experiencing all this "  , that didn't even phase him even and just gave me the all clear to go home, I was swapped over to Predaxa by my GP and no more angina chest pain, well I still get that but not everyday like I did on Xarelto. My half yearly check up with my cardiologist was about a month ago, he was saying that he would rather see me on warfarin rather than the newer medications, I asked why and he simply just said it's a more appropriate medication for the type of blood clots that I have in the lungs, if anyone can make sense of that ? I also was telling him about one of his collegues telling me that it wasn't the medication causing my chest pain, basically I reported his collegue , whether he gets spoken to I don't know as he apparently wasn't a consultant at all, according to my cardiologist he would of only been a registrar.

    I even contacted the makers / suppliers of Xarelto and they informed me that chest pain / short of breath (extreme) was a side effect and recommended that patients go straight to their emergency departments if ever experienced, This is actually listed on the companies consumer medication information sheet, they said the side effect is rare but it does happen. I've noticed all the NOAC family of drugs have pretty well much the same side effects.

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