Posted , 16 users are following.
I would like to read on about PAE .It would be a good thing to know if this procedure works. The names of interventional Radiologist that do this.I'm sure there must be a lot of PAE done on this froum.
0 likes, 45 replies
TKM frank27027
Posted
Frank,
There have already been several discussions started about PAE. You can search for some of them. I had PAE done at OHSU in Portland Oregon in 2013, but didn't help me probably because of my enlarged median lobe. In the last few years techniques have been developed to deal with enlarged median lobes. Dr Bagla in Virginia, Dr Isaacson in North Carolina both do the median lobe procedure. I think Dr Picel at the University of San Diego and Stanford has done the median lobe procedure also.
Thomas
ed70868 TKM
Posted
I have had two PAE procedures with Dr. Isaacson in North Carolina. The first one was effectuve for 3 years and worked well, but the second one six months ago did not improve my flow. I have a large meduim lobe. It is still worth a try. The total cost for the procedure with Dr. Isaacson is $10,500 self pay. My insurance covered it this time. The first time 3 1/2 years ago cost 6500 self pay.. inflation
gene97713 TKM
Posted
The list of Doctors performing TARGeted PAE is correct. I have done my 1 year ago with Dr. Picel at UCSD, who now moved to Stanford Medical School. The results are perfect in any sense without any side effects. Totally off the medication, which stopped working anyway. My prostate was 135 g before PAE, probably around 90 cc now, but central lobe was seriously diminished, obstruction gone. Waiting for how long it will last. If needed will repeat without any hesitation.
ed70868 gene97713
Posted
I hope your PAE holds up for a long time. I was taking two flomax a day and after the first procedure I was able to get off flomax completely. I still have not had to start taking flomax since the second PAE. So the second procedure may have reduced my prostate enough to keep my situation from getting worst at this time. Before the first PAE my prostate size was 140 g and before my second one 3 years later it was 97 g. I have no idea what size it is now. Probably somewhere in the 60.s.
richp21 gene97713
Posted
Gene,
I haven't seen the term TARGeted PAE before. Can you say more about that?
Rich
richp21 ed70868
Posted
Ed,
Curious as to why you had a second PAE if the first one allowed to stop Flomax completely.
Rich
gene97713 richp21
Posted
Rich, search the web. It's the abbreviation for PAE that goes into the smaller arteries in the prostate itself and targets central lobe. It takes longer time and ergo more X-ray exposure. Generally speaking PAE equals 3-5 CT scans. I heard that Dr. Bagla uses special X-ray with image intensifier. Dr. Picel gave me report of my exposure measured by dosimeters. It was substantial, especially with a angiogram made before the procedure. At my age of 70. It was calculated . risk. Internet has calculators. Risk to die from an abdominal cancer raises only by 1%
ed70868 richp21
Posted
The flow slowed down some and I had a 3T MRI that I sent to Dr. Isaacson in North Carolina and he stated that the MRI showed room for improvement so I opt. to do the procedure sooner instead of later. My medium lobe was about 32g after the first PAE and he stated that he was more aggressive with the procedure than when I had my first one. He stated the PAE should reduce the medium lobe also... Since I am 76 I decided to have it sooner so hopefully it would solve the meduim lobe problem. It appears that it did not. Hopefully I can wait a few more years before I have to have something done or before I need to go back on flomax. Hopefully something new will come along that really works long term.
arlington gene97713
Posted
Do you know if you had an enlarged median lobe? Thanks
richp21 ed70868
Posted
Have you tried daily Cialis instead of Flomax?
ed70868 richp21
Posted
I take Cialis daily ... 5mg. It does not do near as well as flomax, but it does has some benefit.
rlast frank27027
Posted
I had it done at USCF in San Francisco last October. I prostate size is 50-55. It was without success, however, I know others have an favorable results with it so I'd certainly consider it. Prior to this, I've had two Urolifts. I had one about 4 yrs ago and it relieved symptoms for about 8 months. I then had another one a year later without success. At this point, I'm getting up a lot during the night and I'm working on some other procedures with my uro. As opposed to some of the procedures which one can experience a lot of side effects (including sexual) , I walked out of the OR with both of the above with no adverse effects whatsoever. Anyway, you probably already have heard, it's a very individual and no guarantees that it will be a positive or negative situation for you. And lastly, you are exposed to a fair amount of radiation with PAE, which I knew, but at 70, I'm willing to live with that.
tom86211 rlast
Posted
rlast,
It's possible that your issues are not being cause by your prostate, but might be related to the bladder neck preventing you from emptying your bladder. Have you explored this with your urologist? I had a PAE - slight success, then a year later back to where I was. Two weeks ago had a bipolar TURP. Hoping that this works. Also getting up frequently at night - every hour to hour and a half trying to empty my bladder so I can get back to sleep. Sound familiar?
Not getting proper sleep is a very big issue.
So, wishing you the very best,
Tom
tom86211 rlast
Posted
rlast,
Last message didn't format properly - happens here once in a while. What I was suggesting is that your issues may not be due to prostate enlargement, but due to bladder neck issues. You should explore this with your urologist. If it is determined that it is the bladder neck muscles that are preventing you from emptying your bladder there is a fairly simple procedure called bladder neck incision that might be an option for you.
Tom
rlast tom86211
Posted
Thanks for suggestion, I'll check that out.
richp21 tom86211
Posted
Tom,
I heard back from support about the formatting problem. They're aware of it and are working on a fix. They said as a workaround, don't have any spaces at the beginning of lines line. I've tried that and it has worked! No more indenting the beginning of paragraphs.
Rich
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