PAE on 04.13.2017

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For the sake of anonimity I´ll not disclose the name of the RI doctor nor

the country which I have done my procedure.

After a lot of research and medical examinations I decided to try a PAE for my BPH problems that last 10 years.

My prostate was said to weigh 154 grs, but after a T3-MRI it was 122 grs.

After the procedure I began to have a painful burning urination which lasts until today. I had a burning feeling at perineum region and lower

abdomen during 10 days. My faeces were hot and burn.

Blood in urine and faeces for three days. Today if I walk for one hour,

blood drops flow in the beginning of urination, and if I stay at home without walking, I became constipated which causes blood in faeces.

Doctor said that some patients takes longer to heal completely (2 or 3 months).

One day before the procedure, my doctor said that PAE, have good sucess rates, but sometimes it can present unexpected symptoms in patients, but radiologists don´t know why !!!!

He told me about a lawyer that has had urine retention episodes, and after a PAE, he experienced a good urine flow in the first day after the procedure, without any bad symptoms.

Although my urine flow improved, seems to me that, unfortunately, I am in the "bad outcomes" side. I still wake up 4 to 6 times at night to pee (urgency and frequency)

I paid US$ 14.000 for the procedure, and I would like to give an advice to all:

PAE actually still presents some challenges to radiologists. If I had to choose I´ll go for a HOLEP. Remember, some times it has not to do with the PAE technique, but with your own body, because RIs don´t know for sure what happens after it.

I don´t have bladder of median lobe problems, but even so, I had bad symptoms after the procedure.

I think that PAE, actually, is not completely safe for some people, but I´m quite sure that, in five years, it will become a very good option for people with BPH problems.

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16 Replies

  • Posted

    Thank you for sharing

    Seems like u didn't have a good outcome but could've been for so many reasons...u are not a good candidate or it was not performed well or complication. But there are hundreds of patients including myself who had a great outcome and from what I have read, the data is good from the centers who have published papers. The other procedure left have much higher risks and may make u worse off. Hope the Holep works for u

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    • Posted

      Please excuse me, but before PAE I´ve made a lot of medical examinations and I was considered a very good candidate. There was not complications on the procedure and the technique used was similar as the techniques used and related and every published papers. I made almost a hundred questions to my doctor and he told me that I was veru well informed about PAE. I enter in contact with other doctors around the world. You have to believe me. Sometimes your body doesn´t react well to a PAE. As for HOLEP did you know that there´s a doctor that have made 3.000 surgeries with good results? Please do a search at that forum and inform yourself. I have you one last question. Why PAE doctors do not tell you about symptoms of patients that have bad outcomes?

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  • Posted

    Sorry to hesr about your difficulties. When I reviewed all of the oprions to treat BPH I selected iTind because it presented the fewest number of complications of any procedure I could find. It has a low downside risk potential. It was the least invasive in that it does not cause much trauma to surrounding tissue. It is the gentlest procedure that I could find.

    I was in at 10 AM, procedure took 5 minutes, in recovery for 3 hours and then went home. The implant was not painful but I did have some stinging during urination but that lasted only 30 seconds at a time. The implant was removed 6 days later. That was uncomfortable for about 15 seconds and then wonderful relief. Like a pebble removed from your shoe. I could urinate normally almost immediately. Instead of running to the men's room 18 times a day with great urgency I was going only 6-8 times a day and could delay the need to go for about 1/2 hour. My bladder finally felt relaxed.

    The two main downsides are nobody knows how long the effects last and it might not be aggressive enough for some men's prostate or bladders. I hear it works in 85% of the cases but there have been no cases of incontinence or sexual dysfunction that I know of. It has been in use for 5 years in Israel and the EU with nobody having a repeat procedure so we know it lasts five years.

    Of course everyone's body is different so i advise seeing at least three different unrelated urologists to hear whatr they say. Some specialize in one or two techniques so that is what they will recommend of course. I had the good fortune to go to a top urologist in New York City at one of the top hospitals in the country so things worked out for me.

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  • Posted

    Irp,  I'm sorry about your poor outcome.  

    Please reconsider identifying your doctor.  It might not be his fault, or it might be due to his technique, equipment or in not screening your properly.

    If this forum has helped you, then you should help others to avoid what happened to you.

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    • Posted

      Hi, jjjj57989. Unfortunately I can´t disclose the doctor´s name because he has connections with a urologist that is my personal friend, and I wouldn´t like to create an enmity. Hope you understand me.

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    • Posted

      He still may be incompetent. Is your friendship more important than helping others?

      Most doctors are taught in medical school to welcome criticism, and want to get doctors with problems either trained, or out of the profession.

      Neal

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  • Posted

    Sorry you had problems, PAE didn't work for me but I DO have the median lobe issue, I don't know if that is the reason though.

    If you are having burning chances are you have an infection - did you get it tested for infection? UTI or even Prostate?

    I don't agree with you, PAE might work for some, but it's too chancy. There are other new methods being developed which will probably overtake it.

    Having said all that hopefully it's too early for you to know whether your procedure was a success, I wouldn't give up hope it can take another few weeks at least.I think you should go to a Urologist and get them to teach you how to self cath as a precaution.

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  • Posted

    Hello I also had a poor outcome from a PAE done in Jan 2016. And I had a lot of the same symptoms you are having. I had a heck of an infection, and also severe prostate inflamation. Unfortunately my PAE Doc was 8 hours away from me.

    My advice would be to get to your primary care doc, or a urologist willing to treat you. Most will not after you have had complications from  a procedure they do not do. But you should really get on a good long course of antibiotic, and prednisone ASAP. Mine was so bad I had to get 3 injections of Rocephyn plus the oral antibiotics. And now even a year later I have lots of inflammation, thst will most likely never go away.

    good luck to you buddy.

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  • Posted

    Hello Irp1 - I am very sorry to hear about your problems. I had a PAE done last summer and I was told I was the perfect candidate. Sure enough the procedure itself went perfectly but I never had a moment's relief from my BPH symptoms. Fortunately too I never had any problems from it too. It was like I never had it done except for the loss in my bank account.

    I have heard of problems like yours if the doctor got too aggressive and embolized too close to your rectum and bladder. This can happen if the beads are too small in an effort to embolize close to the urethra where most of the BPH lives.

    To check this you should get a multi-parametric 3T-MRI to see if there was any embolization of rectum/bladder tissue.

    Good luck to you.

    Neil

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    • Posted

      Then ask your doctor if he had his Mercedes repaired and it worked for 4 weeks and then stopped working if he wouldn't at least ask for his money back.

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  • Posted

    I had PAE done last Sept.  

    I had great relief for 4 weeks then I returned to how I was before the procedure.  

    Fortunately I had no adverse effects except for being minus a few thousand $$$.

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  • Posted

    My opinion. PAE is a very radom treatment. First, the IR cannot predict how or where the atrophy will occur in the gland and to what success it will provide symptom relief. 

    Second, Atrophy does not and cannot occur that quickly in the tissue. The fact that the Lawyer he told you about had first day results was more than likely the results of steriod medication given the frist week of the procedure and it provided relieve from the reduction of inflamation. It works at first but not for long. Atrophy is just like what happens with a broken bone that is in a cast. It takes weeks at minimum for the reduction of the tissue to happen and again, they have no way to control where, how much or how uniform the atrophy happens in the gland. Everyone is different. 

    Third, your vessels will grow back rather fast and around the blockage created by the procedure.

    I chose FLA ( Focal Laser Ablation) also from a IR and it was very successful as the focus is precise in the removal of tissue and it is real time "eyes on" without damage to any of the sexual componet of the prostate. And, they do not enter the Urethra in this procedure. I am very happy with my results. The key to the success it in the selection of the Doctor one uses for the procedure. 

    I did mine in December with a 125cc prostate and life has been great again for the last 3 months. 

    In investigation of the HOLEP it was just too destructive to the sexual componets of the gland for me. 

    I wish you good luck and suggest you look into FLA.

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  • Posted

    My friend, you had this procedure 24 days ago.  No claims on understanding how a PAE works.  That said, the perfusion (oxygenated blood flow along with nutrients) has begun to stop due to hemostasis.  What happens when blood flow is stopped?  Imminent necrosis.  Right now, it sounds like the symptoms you're describing are due to necrotic processes at work.  That is what's MEANT to happen, and it's nothing to be feared. The human body is a marvel because, while one part of your anatomy is necrosing, other compensatory processes are in play.  There is remodeling going on.  Your vasculature is being rerouted.  You haven't even begun to reap the rewards.  All of us want immediate results.  Human nature I suppose.  Give the procedure time - a LOT of time if necessary.  Now having said all this, I would most definitely keep the IR in the loop.

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    • Posted

      A small update. After 30 days of my PAE. I go out for a walk and when get back to home I pee a lot of blood mixed with urine. This blood flow remains at least more three times when I pee again. My doctor said to increase liquid intake (I take 2 liters of water daily). Problem subsided after one day. My conclusion: nobody knows for sure what´s really happening after a PAE.

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    • Posted

      After 45 days of my PAE procedure I still having hematospermia. Caný have sex yet.

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    • Posted

      Yes you can! It will come and go but ejaculation will make it clear quicker!
      Report

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