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Pain

Posted , 5 users are following.

kathy75678
kathy75678

I have no TN pain. My pain and discomfort is from nerve damage done from the surgery. It has rained all day and I feel pins and needles sticking my face. I am very grateful to have the awfull pain gone but there is still a lot of issues to deal with daily.

1 like, 6 replies

6 Replies

  • Cajun9267
    Cajun9267 kathy75678

    Posted

    Yes, unfortunately it will be a life long struggle... I have MRI then Neuro Surgeon tomorrow. Fun Fun. 😔

  • sally90
    sally90 kathy75678

    Posted

    Hi Kathy,  you don't say what surgery you had and when it was done.  I had Gamma Knife a year ago in July.  The TN was pretty bad for 3 months then it became permanent, it was excruciating all the time and I really could not cope.  Then on 1st March I woke up and had no pain, since then my face on the left side has gone totally numb from the top of my head to my chin I could draw a line straight down and 1 half has no feeling and the other is fine.  I also have a numb mouth and half my tounge, I have lost my taste on that side.

    I can somtimes feel something itching on the numb side but cannot scratch it and if I am in the sun for any length of time I do have pins and needles in my face it is also sensitive to cold.

    I do hope this is helpful but the main thing is I feel a different person without the pain.  Just am still scared it will return!  Wishing you all the best.  Sally

    • Cajun9267
      Cajun9267 sally90

      Posted

      Sally90 i sure hope this is it for you! This gives me hope. So many people are posting that nothing has ever helped them. I can't imagine living a productive life with this pain. Please keep us updated. Cheers.... 🙄😊

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