Pain
Posted , 5 users are following.
I have no TN pain. My pain and discomfort is from nerve damage done from the surgery. It has rained all day and I feel pins and needles sticking my face. I am very grateful to have the awfull pain gone but there is still a lot of issues to deal with daily.
1 like, 6 replies
marlene36342 kathy75678
Posted
Cajun9267 kathy75678
Posted
Yes, unfortunately it will be a life long struggle... I have MRI then Neuro Surgeon tomorrow. Fun Fun. 😔
kathy75678 Cajun9267
Posted
wannahelp2017 kathy75678
Posted
So you don't have TN?
sally90 kathy75678
Posted
Hi Kathy, you don't say what surgery you had and when it was done. I had Gamma Knife a year ago in July. The TN was pretty bad for 3 months then it became permanent, it was excruciating all the time and I really could not cope. Then on 1st March I woke up and had no pain, since then my face on the left side has gone totally numb from the top of my head to my chin I could draw a line straight down and 1 half has no feeling and the other is fine. I also have a numb mouth and half my tounge, I have lost my taste on that side.
I can somtimes feel something itching on the numb side but cannot scratch it and if I am in the sun for any length of time I do have pins and needles in my face it is also sensitive to cold.
I do hope this is helpful but the main thing is I feel a different person without the pain. Just am still scared it will return! Wishing you all the best. Sally
Cajun9267 sally90
Posted
Sally90 i sure hope this is it for you! This gives me hope. So many people are posting that nothing has ever helped them. I can't imagine living a productive life with this pain. Please keep us updated. Cheers.... 🙄😊