Pain after episodes
Posted , 5 users are following.
Hi there, I've had raynauds for around 10 years in both hands and feet quite severely, still unsure wether it's primary or secondary. I've tried nipifidene, but makes me feel very unwell?!?! I have many attacks daily and often get chilblains, but it's the excruciating pain I get in certain fingers that's the worst. When the blood supply is coming back I can only describe as my finger tips being cut off and dipped in vinegar?! Brings me to tears and takes my breath away....this is a new symptom for me. Anyone else also similar?!
Thanks in advance x
0 likes, 4 replies
vicky06455 MrsMissyMoo
Posted
MrsMissyMoo vicky06455
Posted
Hope your meds help you. X
debralee MrsMissyMoo
Posted
Hi I was about the same as far as pain level goes until they did a flolan treatment about a year ago. Now it's mostly just a red color that still hurts and burns but at least it doesn't look like I'm dead, lol
?They first tried me on Silendifil, two different blood pressure medications, nitro patch, cellebrex and probably a couple i'm missing but the most effective was the flolan..
tim24983 MrsMissyMoo
Posted