Pain after urination, not a UTI or STI

Posted , 13 users are following.

Hi,

I'm a 20 year old woman with no other health problems.

My issues first started when I was about 8 years old when there was blood in my urine and it hurt to go. I had a kidney infection which was treated and since then and the age of 16 I've had 2 or 3 UTI's which antibiotics have treated.

When I was 16 I became sexually active and started to get pain after urination. I was put on antibiotics for it and since then have always urinated after intercourse. But would still get the burning sensation after urination every so often.

However it's been three months now and the symptoms haven't gone away. I've been put on 3 different types of antibiotics. All tests have shown negative for infections and samples have been sent to the lab but still not infection and my doctor said everything looks perfect. I've also tested negative for all STI's.

At this stage my doctor told me I will just have to live with it, there is nothing more they could do.

In the past 3 weeks I've also developed a constant urge to urinate even when I don't need to pass anything. It's so strong that I haven't been sleeping and is starting to cause a lot of stress and effect me in all aspects of my life. I also have cramps kind of similar to menstrual cramps but don't have my period. I'm not sure if these could be from me subconsciously trying to hold in the urine because of the pain caused by it?

I saw a different doctor today who referred me to a gynaecologist because it could be endometriosis but he was not sure because that wouldn't explain the superficial burning after urination. He was going to give me medication for overactive bladder but then that wouldn't have anything to do with the pain. I'm on the waiting list no see the

gynaecologist but he said it will probably be

a year before I'm seen.

I really can't live like this for a year. The pain I am used to and can put a hot water bottle between my legs at night which helps a bit. But the constant feeling that I have a full bladder is too much and makes me so uncomfortable I don't know how I'll manage with it for a year and after the year still have no guarantee it will get better.

I've tried changing my diet, cutting out intercourse, drinking more water and cutting out all sugars, preservatives and food colouring but nothing I do helps.

Please if anyone has been through something like this and knows something that worked for you or someone you know please let me know! I'll try anything I just can't continue like this. I've suffered with severe depression in the past due to a traumatic event and I'm starting to feel down in ways I haven't since that time. Anything would be so appreciated,

Thanks

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  • Posted

    I'm guessing since you're having to wait a year to get in to see a gynecologist that you live in the UK. And I'm guessing that you are not a private pay individual which I've heard is kind of expensive. I would take your doctor up on those pills because I've been on them myself for the urgency and they do help with the urgency very well so you'll get rid of that feeling and they also will slow down your need to urinate so at least you will not get the burning as often. I quit taking them because I felt it difficult to get my urine started going when I had to go. Not that I couldn't go eventually I just got frustrated with the length of time it took me to start going. And my urgency was not a really bad problem. In fact now that I've been off of it for a while I only get the sensation once every couple of weeks and it only lasts for a few hours. I just didn't feel it was worth taking the pills for in my case but I think you would feel so much better if you did. I wish you could get in to see a gynecologist a little sooner than a year that just seems horribly horribly long time but that is how your health system works unfortunately. If there's anything you can do to change that I would say do it. Would it help to go to the A&E. I think that's what you call your emergency room. It's something to consider.

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    • Posted

      Thanks so much for the reply!

      I will start taking pills for overactive bladder to at least deal with the discomfort of always having to go. I love in Ireland so our health system is like the UK. Unfortunately A&E would not be able to do much either than refer me to a gynaecologist. Private healthcare isn't an option for me either, I've already spent about €200 on doctor visits which is more than I can afford to be spending. The pain at least is something I am used to so if I'll try these tablets and se how I do smile

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  • Posted

    As for the uti what does the dr say, your urin is cloudy but failed to grow anything?  As for the over active bladder I had that, lasted months would have to get out of bed ro pee three, four times a night.  I even had blood in my urin so was sent to a urolagyst. 

    Had urin test, after urin test, cystascopy, not painful br the way, then he did a cat scan called a uragram, includes kidney, tubes bladder ect.. All good.  So fantastic he put me on the over active bladder pills they did nothing.  So instead of decreasing my ware intake I increased it to two and a half L.  In the morning I add 1/8 th of a teaspoon of Celtic salt or Himalayan and the same amount of potasium salt ( called no salt, same section as salt).  I drink one glass in the morning and one at night.  It's just homemade electralite it's just missing the sugar.  Anyway long story short it took a few weeks but it stopped.  As for the uti,s try not to get antibiotics till they grow a culture.  You may also have to use condoms, I know ugh what a pain.  Also make sure you empty your bladder completely.  Good luck.  Also have they tested you for cysts in your uterus?

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    • Posted

      Thanks for the reply!

      No my urine isn't cloudy and is completely normal, no indication of a UTI. I will try taking pills for over active bladder to see if it helps and I might need to lower my water intake im drinking about 2 1/2 litres per day. I might also try those electrolyte drinks, why no sugar though?

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  • Posted

    I'm sorry you are dealing with this. I've been managing an OAB for over three years. The worst symptom in the beginning was a constant, unending urge to pee even immediately after emptying my bladder. I got severely depressed because I couldn't leave my house or properly take care of my children because all I was doing was going to the bathroom nonstop. So, I have been on oxybutynin, an OAB med, in the past and it worked wonderfully for me to decrease urgency and frequency. However, pain is not typical of an OAB. You may want to look into Interstitial Cystitis while you are waiting to get in to see your doctor. It is a chronic condition usually characterized by pain, urgency and frequency in the absence of any infection. It's more common in women and can affect women of all ages. If I were you I would go on a very alkaline diet (google IC diet for suggestions of what to eat), consider medication to decrease your frequency and urgency and research more natural supplements like marshmallow root and pumpkin seed extract. Once you see your specialist he can run more tests to pinpoint further what may be wrong and then you'll probably have more options. Good luck to you!

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    • Posted

      Thanks for replying! I am starting to take pumpkin seed oil for the OAB which will hopefully help the urgency. I've tried the alkaline diet before but could only stick to it for a week or two at a time. I do think it might help so will try it again. smile

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  • Posted

    I had all this exactly in the 1980s when the NHS was on the ball.  After many many tests including a systogram I think it was called but not necessarily spelt that way!! I was diagnosed with a REFLUX KIDNEY.  I had an operation to close off the extra tube in my kidney and absolutely no problems since.  Perhaps you could read up a bit more on it, and if you think it could be you, go to the dr and say thats what you think it could be, that will hopefully mean you dont have to wait a year!!.  You could phone a local private hospital, they will give you a price, it could be worth it to pay at least for an initial consultation.  Once you have a proper diagnosis it may be serious enough for you to be transferred back to nhs for the treatment.  Hope its of some help.  I feel for you.
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    • Posted

      Thanks for the reply! Yeah that's worth looking into especially if you had all the same symptoms. I'm on the waiting list for that same type of exam as they think it may be endometriosis. But it will be a year unfortunately. Is there anything you did that helped relieve the symptoms?

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    • Posted

      Is there nothing you can do to bring the appointment forward, one year is a very long time with painful symptoms.  The only thing I could do was have a long term antibiotic and drink lots.  The antibiotics helped.  Sex was impossible because that just triggered it all off again. I have never heard endometriosis causing these symptoms.  But im not a dr lols Good luck
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  • Posted

    Hi all I've been suffering with this for 8 years now. It used to be on and off so I could deal with it but since January it's been constant. My bladder just feels full 24/7, it's a constant pressure on my bladder/cervix. Really been getting me down. I've had tests, scans and urethra dilation nothing has worked they are now going to try and treat my for IC just praying there will be some improvement otherwise I really don't know what I would do. I'm in the uk and was so hard to get appointments in the end if got so bad that I called an ambulance last October because I was on the floor in bits and the worry and anxiety took over so I was being sick too, from that day they have done all tests and took a bit more notice of me. I hope ur symptoms ease for u. Does it sound simular to mine? It's not a pain just constant deep pressure all the time, even straight after a wee.

    Lori. X

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    • Posted

      I to have suffered from urgency. But mine has only lasted a few hours at a time. I took the medication for it and that stopped the problem completing but I didn't like one of the side effects so I finally quit using it but I think if I had it constantly like you do I would continue the medication. Now my question to you is are you using the medication now or is that with what is being considered for you next. In case you were wondering this side effect that I did not like glad that it made it hard to go when I really did have to go pee.

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    • Posted

      I've got medication for an over active bladder but hasn't helped at all I'm now waiting for appointment which is in 2 months to talk about further treatments, which have bad reviews and have made some people much worse! So awful feeling like this and like it's never going to end! 😥 Thanku for reply x

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