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My condition started about 15 years ago and after numerous antibiotics and lotions nothing has helped. I found that during periods of being less heavy my clothes would not be so tight and therefore the sores were less. This didn't have anything to do with my actual weight. I have tried to stop smoking, however to no avail.
During my pregnancy it was a lot less, however as soon as I gave birth it was back with a vengance. It is worse than ever now and finally my doctor has referred me to a dermatologist. A bit wary now as I'm no fan of antibiotics or surgery.
It has affected my sex life as I'm so embarassed and wearing a bikini is just not an option. Going on hols is no picknick either as I will only go to resorts with lots of privacy and therefore cost a fortune. The scarring is so bad that I am mortified that anyone will see.
The pain of the condition is one thing, but the emotional implications are just as bad. Not wanting to be naked with my husband, not being able to go swimming with my baby, the stains in your clotes and the total embarassment are just as bad as the pain.
Although I find it such a shame that so many people suffer from it, apparently it's more common than diabetes, I'm glad that I am not the only one. The most worrying thing I find is that pharmaceutical companies don't think there is any money to be made out of this condition and therefore not a lot of medication is available.
Will keep hoping for some sort of cure and hopefully my dermatologist will help. Fingers crossed!
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