Pain and symptoms for 3.5 years in previously extremely healthy 24M - all daily activities impossibl
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So I don't even know where to begin, because new symptoms pop up every few months, and everything is worsening with time.... I'll try to give a VERY brief summary, I do have a lot more info written already if anybody actually wants to try to help. I'm not sure if this is an autoimmune disease or not, but several people told me that it sounds like some kind of autoimmune.
3.5 years ago I was a perfectly healthy 24yo guy, ate well, did tons of sports, had 0 health issues my entire life, I always considered myself lucky to have had such a perfect life. I was backpacking SE Asia at the time, and towards the end of my trip I started feeling sharp pains in my left flank region. Every little bending movement such as picking up a glass of water or getting into a car would result in very painful sharp pains. These very intense pains lasted a few months and eventually became more bearable. But the pains never fully disappeared – to this day, my left flank region flares up when I do very trivial movements – if I’m sitting or lying down for hours then it’s ok, but if I walk for 1 minute or do anything remotely physical such as set the table, it starts hurting. It doesn’t hurt as sharply and as strongly as 3.5 years ago, but it’s always there.
When I did try to go jogging or play sports or do anything, the pain would become much more severe again, so I was forced to live a very sedentary lifestyle. A few months after the initial pains, I started having a lot of gastrointestinal issues – I had stomach aches for hours every single day, I had excess gas and a noisy tummy 24/7, I had diarrhea very frequently… but for the first ~2 years at least everything was localized to my flank/stomach area, and as tough as it was, I was still living with it and trying to remain myself by going on hikes, bike rides, enjoying things.
Sometime in the past 2 years I’ve started developing numerous other unexplained pains all over my body. Many pains start randomly and disappear after a few weeks/months, and on every given day I have multiple different very painful pains. My right knee and right shoulder started really hurting me 1 year ago and I feel like I’m getting more and more strange pains with time and my condition keeps worsening. For the past few months it's been very hard to walk because every step really bothers my knee. And my right arm is almost useless because anything I do with it hurts my shoulder - simple things like picking up a towel, putting on clothes, lifting the blanket off me in bed - I slowly learned to always use my left arm because my right arm couldn't handle it.
My right hand is also EXTREMELY cold almost all the time. Just the fingers, from the wrist down, my right hand feels like ice all the time. My back/shoulders/neck are in pain and sore 24/7, it's just become a fact of life, I've just gotten used to the fact that they always hurt and I can never be remotely comfortable.
Another strange thing that's been happening to me is that last year I started developing tremours and extreme muscle weakness all over my body. I first noticed it with my fingers, they shake a lot when I type on my laptop or on my phone and when I eat I need to focus more on being steady. But it's absolutely every muscle in my body that whenever it's not at rest starts shaking/tremouring a bit, as if there is no muscle. It's really scary.
Last symptom: all my joints pop (not click, but literally pop, I can hear and feel something move) from any tiny movement. Lifting my arm up results in a big pop, running my hand through my hair results in big pop in my wrist, getting up I feel my hip pop, if I bend my elbow I feel the elbow pop. It feels like I'm being completely torn apart from inside....
The last strange thing is that most symptoms are way worse when I wake up, and are best late at night (very late, after midnight). It's a huge difference, night and day, between the night time and day time [smile]
My entire life has been on pause for 3.5 years, I went from being the most active person I know to someone who even getting dressed or taking a shower is a big painful struggle. I've seen dozens of doctors and spent thousands and thousands of dollars and hundreds of hours researching, and so far the only thing I get is all blood tests being normal and I'm told it's no big deal. I would so so so so grateful if you can help in any way - I literally do not have a life or a future right now and spend about half my awake time in too much pain to do anything.
- muscle pain in left flank almost 24/7
- pain in left SI joint almost 24/7
- pain in lower left ab
- gastro issues (diarrhea, bloated 24/7, gasy ALL the time, stomach aches daily)
- distended areas in stomach
- right knee and right shoulder almost unuseable
- all joints popping constantly from any movement
- very cold right hand fingers and stiff fingers
- tremours/shaking in all muscles when not in rest
- different pains in different body parts daily, seemingly random
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