pain and tender points all over body - fatigue and constant in unrefreshed sleep - fibro?.

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I'm a 17 year old female. Recently I was diagnosed with joint hypermobility syndrome which they think has been affecting me since I was younger. 

They gave me 30/500 zapain and sent me on my way. 

When I was a lot younger I had ribcage problems which I used to call "sensitive" ribs I seen the hospital for. Because I couldn't lie on my stomach as it hurts my ribs and when pushed in it is really sore. They never found a diagnoses for this. 

Recently in the last few months I also seen a doctor because I had really bad pelvic problems it would hurt to sit down and push down. I also couldn't have sex because the pain was that bad.  I had an internal vaginal exam and I was literally crying with the pain and she said everything looked normal. Which I was convinced wasn't. 

I have been having tingling sensations in my left forearm down to my last 2 fingers which can last all night. I have pain in my back, upper and lower around the shoulder areas, also under my ribcage hurts a lot I am constantly leaning to the side and my bones crack what feels like my ribs. My hip burns and i feel pain down my legs. I have constant fatigue and I tested the amount of hours I may need to sleep but no matter how many hours I still feel horrible in the morning and my sleep is never refreshed. 

All MRI scans are clear and doctors don't know what to do with me. People think I am a hypercondreact and it's horrible I can't go a full day without being in pain. 

Me and my boyfriend have been looking into different things and found this website. We were looking into fibro and the tender points which clicked with him he said do you remember the little points on your arms neck and hips that are really painful. 

We looked into the tender point thing and he applied pressure to the places were it said to and most of the areas I found really painful. 

I don't think I just have jhs, should I speak to the doctor about looking into fibromyalgia?

What should I do??? Any advice would be appreciated, can't stand all of this pain. Cocodamol isn't helping and I take amitryptlinr at night time which keeps me sleeping. 

Thanks 

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6 Replies

  • Posted

    Take control of your health yourself..,doctors don't know  everything about Fibro..sometimes you need to go to a few doctors before you get a diagnoses, fresh eyes and all that.. It's great that your researching it too..take the printouts to your doctor..if he doesn't  agree,,,and your still convinced it maybe something else, tell him you ape ant a second opinion,,mist of us have to do this.,sometimes it tajes years to diagnose because there are soooo many different symptoms that mimic something else...hope you get sorted soon, but please remember YOU ARE IN CHARGE OF YOU....BE BLESSED, STAY STRONG.. DOCTORS ARE THERE ONLY TO SERVE THEIR PATIENTS.,THATS YOU VICTORIA....XX
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    • Posted

      Thank you for your comment, it makes me feel much better about doing research. 

      My friends and family laugh at me aswel and doctors and tell me google isn't the answer but I have found a fibro criteria which is in 3 parts which I have filled out and am going to show it to the doctor soon. 

      I have an appointment with a neurologist on Monday probably just to tell me there's nothing they can do and MRI scans are clear.  

      Anyway thank u for ur response take care x x 

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  • Posted

    Hey, 

    be very calm with the neurologist and them do there thing and if they haven't mentioned fibro then put it to them.

    In the past I have said that the Internet can be dangerous.... until now when I have been fighting pain for over a year and then found the most caring people are those who are struggling with the same pain as me.

    If you haven't tried acupuncture then do so and plates or yoga very light exercises, you can find dedicated YouTube videos for fibro exercise. 

    acupuncture isn't for everyone and indeed I reacted badly to it this time last year but I will be trying it soon.

    We all keep smiling through the pain and try not to  break in front of people but when I have been in tears walking through the hospital and having to sit down and take a break people take notice. 

    Keep your chin up,best of luck with the neurologist and for the rest of 2014

    Sporting Regards 

    Graham 

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    • Posted

      Sooo right there graham....that's how I ended up being diagnosed, after many years of struggle...I  just gave the doc some research papers..he was very interested and researched himself.. Too much knowledge is not a good thing BUT truthful knowledge is a really good thing....one just have to get on a good website like the Mayo Clinic in the US. And any good Fibromyalgia Syndrome Research site.... Not just them of course but ones that have great backup and are not just researching for $$$$ like for a drug/company..they are just too biased... to their research/theories..:-) Oz
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  • Posted

    Hello Victoria,

    You are so young, my heart goes out to you having to deal with all these symptoms. At least it sounds like you have a very supportive boyfriend - that is so important, in my opinion. Point your family towards articles that might help them understand, ther is a lot of reliable info out there on Google, don't let people tell you otherwise! Finally, I'd like to say, a lot of people with this condition seem to be diagnosed by a rheumatologist. Just another avenue to go down if you don't have any luck with the neurologist. Good luck

    Take care, Anne

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