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I am a 37 year old female with a normal weight BMI. I have been on 40 mg Nexium since 5/2017 for GERD and LPR. I started slowly cutting down November 2017. I am currently on 30 mg Nexium and really struggling. I don’t have heartburn or voice issues again, but I have a dull ache between my shoulder blades. It has gotten worse and worse the more I cut down on the Nexium. Sometimes it is almost debillitating and I feel scared of esophagus issues. Sometimes the pain goes up to my neck and down my back. I am currently taking mastic gum between meals, 75 mg ranitidine, chewing DGL licorice, taking digestive enzymes, and drinking aloe vera juice before meals. I am on a probiotic and drinking apple cider vinegar in water twice per day. I have tried dietary changes and have recently given up sugary sweets.
My question is, should I be worried about the nearly constant dull ache between my shoulder blades or is this a normal part of acid rebound? If it’s normal, I can persevere through the pain and keep cutting down on that horrid PPI. Has anyone else dealt with this? I am considering making an appointment with my PCP, but they always say I should increase my PPI as high as possible. I am tired of drugs. I am only 37 years old. I have tried getting off PPIs before in 2016 and it worked for awhile, but then I had shooting pain in my back and chest. I got scared at that point and started up again and increased from 20 mg to 40 mg per my PCP’s instructions. I am grateful for any help.
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