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Pain but bloods say no inflammation

Posted , 4 users are following.

clare32950
clare32950

Hello diagnosed with RA 18 months ago. Taking methotrexate. I've had several flares with hot painful joints.what I'm confused about is I sometimes get pains in joints with no inflammation showing in bloods. Aching and shooting pains in several joints but also pain in backs of heels and front of shins. Does any of this sound familiar to anyone? Especially the no inflammation showing bloods. I'm RA positive and anti ccp positive. Thanks

0 likes, 4 replies

4 Replies

  • Justgettinby
    Justgettinby clare32950

    Posted

    Hi Clare,

    I'm similar to you. Even during my worst flares ever I can have blood work to check the inflammation levels and it hardly shows any at all (cpk, and esr). I test crazy high for both CCP and RF, have a deformed wrist, damage to my right ankle, and an elbow that won't straighten or bend all the way so obviously I have some kind of inflammation. I also don't get the swelling others do. Obviously I have some kind of inflammation going on or I wouldn't feel like I do... I'm on Enbrel, but it seems to have quit working too, so I get to start a new med soon that I hope will. I really wish they wouldn't base everything on a dang blood test, but how we FEEL! I wish you the best and hope you have a doctor who understands all this.

    • clare32950
      clare32950 Justgettinby

      Posted

      Thanks for your reply.I thought I was losing the plot. I hope you do better on your new meds x
    • Justgettinby
      Justgettinby clare32950

      Posted

      Wow....really? Geez, try to help someone out with similar issues and just get kicked in the gut. Guess I won't be responding or posting here anymore. I was under the impression that we are all here to help each other out. Was I ever wrong... goodbye to this site.

    • elspeth97587
      elspeth97587 Justgettinby

      Posted

      I have just been catching up on posts and was sorry to see you are leaving the site. I am not sure what has upset you but everyone's contribution is personal and valid and it would be a shame if everyone else can't gain from your experience. I am the same as you and treatments don't work very long for me.

      Fortunately my Rheum team know that my CRP doesn't show up abnormal very often but my rhematoid factor was checked and was something like 800. I hope you have got your new meds by now and you are feeling a bit better.

      Take care x

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