Pain controlling my life!

Posted , 5 users are following.

Atypical face pain becoming unbearable and very little relief from analgesics. No quality of life and feeling very isolated.

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8 Replies

  • Posted

    Sorry about your pain.  My doctor says acupuncture could help you   Also, check out emuaid max cream.  Hope it works
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    • Posted

      Thanks Sandy, yes I am about to try acupuncture as I have heard this could help, not sure about cream as the pain is deeper seated than a surface pain - it’s unfortunately more like a constant ‘bone’ pain! I will update you in the acupuncture and it’s effectiveness.

      Thx. 

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  • Posted

    Topical creams don’t do much if anything for neuropathy. All you can do       is to reduce the pain and even then it will only be by a fraction.  I am using nurofen heat wraps for arm nerve pain and I am still feeling the pain.  I have two neuropathic arms and I am now preparing to learn to live with the pain.
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    • Posted

      Hi Pippa, 

      It’s a horrible pain to have to live with - one of the worse to treat I’m told, and very little understanding by health professionals.  I will give the heat wraps a go as anything is worth a try also looking to try acupuncture.  Getting desperate here but nice to hear from people and their experiences and suggestions. xx

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    • Posted

      My hands also get tingling and numb if I am holding anything for too long or sometimes it happens randomly.  I have had my hand lose power for a few minutes because of it and I just managed to slam a glass back down on the table before my wrist flopped.
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  • Posted

    Have a doctor look into trigeminal neuralgia
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    • Posted

      Hi,

      If only it were that easy LOL!  I have suffered from this pain for 20 years and been back and forth to various GP's and numerous appointments at the maxillofacial Hospital - its not trigeminal neuralgia!  It's 'atypical' facial pain or idiopathic pain which is a constant pain unlike the TN which only comes intermittently.  As you demonstrate there is a lot of misunderstanding surrounding this type of pain. 

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    • Posted

      Hi- I am in the same boat! But mine just started a year ago. Been to numerous ent’s & Maxio specialists. I had 2 teeth removed- the last tooth caused more weirdness. My mri showed only mild inflammation in sinus and a sinus cyst otherwise clear. I am freaking out because I feel like I am not getting the proper treatment. So that’s my label right now. You have had yours for 20 years so on a positive note it must be reassuring that all the scans haven’t found anything serious. Pain sucks period. Hopefully one day you will find relief.

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