1. Community
  2. Gut, bowel and stomach
  3. Pancreatitis and Pancreatic Disorders

Pain even though enzyme levels are normal

Posted , 4 users are following.

sherry1215
sherry1215

I have been hospitalized with acute pancreatitis 19 times in 3 years. Have had 2 ERCPs and several upper engioscopies and have had my duodenum stretched. I also have IBS, diverticulitis and ulcerative colitis. My problem is that I have pancreatic "contractions" what seems like 100's of times a day and they are very painful and my enzym levels are normal. How or what can can I do or take that could help my pain? My doctor gives me 70 Norcos 10-325 a month and I take them but to be honest, they seem very ineffective. Its unbearable sometimes and I don't know how to make my doctor understand. I've thought about asking him to send me to pain management because my pain is not managed. Any insight would be greatly appreciated.

0 likes, 4 replies

4 Replies

  • mary_420
    mary_420 sherry1215

    Posted

    I would definitely see if you could get into pain management, though to be honest, with this crackdown from the CDC and big brother, chronic pain patients are suffering everywhere. I get 6 hydrocodone 10 a day, plus a 50mcg Fentanyl patch every other day, and it still doesn't control my pain, so I'm sure you are suffering.

    Sorry I don't have any better advice. I wish you the best of luck in getting your pain under control.

    • sherry1215
      sherry1215 mary_420

      Posted

      I am suffering. 😰 I am always scared about cancer too. My mom, grandma, great aunt and 3 cousins have died from pancreatic cancer. We have Lynches Syndrome a genetic condition. My sister is only 41 and had breast cancer and had to have a double mastectomy and we both have had hysterectomies so we don't have to worry about cancer there. It's frustrating and it interferes with every aspect of my life. Work, spending quay time with my kids and grand babies and my poor husband, bless his heart has had to take care of me so much.
    • mary_420
      mary_420 sherry1215

      Posted

      I understand. I am currently waiting for a disability decision due to other chronic conditions of mine, but before I lost my insurance I was found to have a mass in my pancreas which was causing all my ducts to be dilated both in and out of my liver. Kidney bloodwork was bad too. Now I have to sit here and wait before I can follow up on this mass to see what it is. It's scary.
    • anne92759
      anne92759 mary_420

      Posted

      Hi Mary sorry to hear this it does sound very worrying.I had the sameonce from a scan in was found in my pelvis,not pancreas,I was told I had a large mass,I worried like mad for weeks untill I had an endoscope and it turned out to be a large bank of scar tissue,from a pre

      vious opperation.So try not to worry too much and I wish you all the very best,it realy helps sharing things with other people on this site,so thanyou to everyone involved,best wishes,ANNE.XXX

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.