Pain in neck
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Dropped 1/2 mg pred yesterday so am now on 11 1/2 mg . For many years before diagnosis have what I have today severe nerve pain in neck through to top of skull into top of left cheek .Nothing notable through my eye.My doctor put me on amatriptalin about 4 weeks ago to help with this .it helped as I have had nothing senifigantup until this last reduction .Does any one else get this .Co codamal hasn't touched it today .Have just taken my Amatrytolyn 10mg ,would it be ok to take another ? I see my doctor Tuesday re blood test result and this pain will have hopefully have gone away .I did Ask her at the start of my PMR journey about GCA and she said my blood test results were not high enough for this otherwise she would have started me on a much higher dose .Has anyone helpful comments out there as am,bit desperate .Just going to try ice pack .Hopeing itis just a withdrawal Carol
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tina-uk_cwall carol16456
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carol16456 tina-uk_cwall
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EileenH carol16456
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Do I understand you have had it for several weeks? In that case it isn't necessarily associated with the pred drop. If you are really desperate though, the OOH service is the place to ask.
If you have had this and neck/shoulder pain in the past it might be worth seeing a physio. Myofascial pain syndrome (MPS) affecting the shoulders can cause neck pain and referred pain because of trapped nerves - I kept mine under control with Bowen therapy which is something a lot of people have found helps with the add-on pains in PMR. MPS often occurs alongside PMR, is helped by the higher doses of pred and then reappears as the dose is reduced - it is caused by trigger spots of inflamed and hardened muscle fibres with concentrations of the same substances, cytokines, that cause PMR when they are spread through the whole body.
carol16456 EileenH
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EileenH carol16456
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Never sort out medication with other people around! I have a dossett box which I fill each evening with the next day's pills since I have 3 lots. The only one I don't put in unless we are going somewhere away from home is the nighttime lot - I always take 24 hours-worth of pills with me. If you just have the pred to worry about then you can get boxes for a whole week, put the pred in on Sunday night and it doesn't matter if you have visitors - they are there and right with nothing to worry about! No fiddling about with cutting tablets and stuff.
My neck and shoulder pain also sometimes affected the back of my head and I'd had it since I was in my teens on and off. I had an accident as a 4 year old that probably didn't do my back much good. After a whiplash injury in my early 30s it was utter hell - but a combination of Pilates and Bowen therapy every few months made a big difference though it never went away altogether. I also had a single wisdom tooth that had been growing squint for the last 30 years removed a couple of years ago - miracle! Neck and shoulder pain pretty much cured!
carol16456 EileenH
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carol16456
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be ok to take a5 mg pred Incase i had not taken the 10 mg
EileenH carol16456
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carol16456 EileenH
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LisaCACO carol16456
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