Pain in right side of neck after reduced dose of Thyroxine

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Help needed please I am a 50 year old woman who was diagnosed with an underactive thyroid 18 years ago. I have never been right as the Dr keeps changing my dose every time I have a blood test. He says this sometimes happens, but I constantly feel lousy, tired spotty, overweight, high blood pressure (now medicated) and IBS. I work all week and spend the weekend in bed.The mood swings are also awful. Since another reduction I am now on 100mcg and have developed an unusual pain in the lower front right hand side of my neck (can't feel a lump or anything) but get aching through shoulder and side of head.

am really getting a bit fed up now as the Dr just doesn't seem to understand how I feel and has offered anti-depressants. I have seen a specialist in the past but he was a diabetes man rather than thyroid and actually commented on the wrong set of blood results!

i guess my plea is twofold first is there anyone else out there who has had similar symptoms and 2 can anyone recommend a good specialist? I'm thinking of going privately now even though it's so expensive and thought about the Birmingham Thyroid Clinic?? I think 18 years is too long to have put my life on hold!!!

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4 Replies

  • Posted

    Hi Wendy

    I don't have all the same symptoms but a few months ago Ireally felt absolutley terrible. I went to my GP and had more tests done and my T3 had changed so I had to go and see a consultant. However I looked up on the internet about T3 (This is where I found this forum). I might be very stupid but NO ONE had ever told me that I needed to take my Thyroxine with a full glass of water at lease half to one hour before eating because it absordbs into the body better. Also that you MUST NOT take ANY stomach medications at the same time and preferrably have a gap of at least 4 hours before taking any. Because I have other illnesses and a lot of pain I was taking anti inflammatories  and these cause massive problems with my stomach. SO EVERY morning for many years the first tablet I took was Lansoprazole or Nexium for my stomach.  Because my stomach had been so bad my dose had doubled. Stomach medcication like these and Colofac for IBS which I also took STOPS the thyroid tablets woking.!!!!!

    Neither my GP, NOR the pharmacist who dispensed my medication all at the same time had EVER told me this. SO a few months back I altered the times I took everything and It has made a big difference. I can get out of bed now and don't feel anywhere near as exhausted as I used to. I Still have my other problems relateing to other illnesses but as far as I can make out that was what was causing the thyroid problem. Hope this helps.

    YOu may of course already know all this

    • Posted

      Hi Christine, I have never been told this either and I take thyroxine with blood pressure medication every morning with a little water certainly not a full glass. I will try changing my times round.

      thank you so much - thyroid disease is so debilitating and no one including Drs understand unless they've experienced it!!

  • Posted

    i really admire your determination over this.

    the best person you could see actually would be a naturopath...they could advise you on supplementation and help to optimise your body's response...and so minimise the dosage of thyroxin needed.

    i can also recommend a great book which i'm working through xx

    • Posted

      help for hashimotos...alexandre has kell



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