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Hi, I'm actually posting on behalf of my Dad. He's 69 and has had TN for 2 years. The Carbamazepin tablets (2 a day) have been holding it at bay most of the time, he gets a few shocks per day. But this past week it has got worse with him having several attacks that have lasted for minutes (in a restaurent and in tescos!) He upped his tablets to 4 per day but on Thursday he had an attack at my house which lasted 20 minutes. The pain was continuous, then when it eased a bit he went ice cold and shivery (think it was shock).
I am looking for a specialist for him, but aso wondered if anyone else had experience of this continuous pain and if so what do you do? He was so bad I thought I was going to have to call an ambulance. On the bright side, the next evening he had recovered enough to go to my son's concert, without any attacks!
I want to be able to support him and am researching as much as I can, all your advice and posts have been very helpful.
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