Pain relief help

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Hi all me again

I'm after some advice on what everyone has found effective for pain relief from the pain in your head

It's gotten worse and worse to the point it wakes me up every night now the past few days with the pain at the back of my head (just above me neck) I've been out on so far:

Co codamol

Naproxen

Cinnarizine

Sumatriptan

Bethahistine

Nothing touches the pain and it's literally unbearable. I'm on neurntan for nerves and acetazolamide for the pressure neither do much to ease it.

I'm heading back to the docs tomorrow but just wondering if anyone can suggest anything that is really good to ease the pain!

Many thanks

Rachel

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7 Replies

  • Posted

    Hi, I was on loads of medication including nerve block injections, this was before I was diagnosed and nothing helped, I had to get out of bed very slowly as the pressure was unbearable till I was on my feet. My neurosurgeon recommended decompression surgery Aug 2014, I'm a lot better but there is still some pressure but not on the scale it was, maybe you need some advice from a neurosurgeon now, as you can sometimes be passed back and forward and getting nowhere. As I was for 7yr.
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  • Posted

    Hi Mrs Murphy

    My neurologist has prescribed me Amitriptyline 75 mg.

    And I also take Co-codamol along side it when the pain is bad mostly every day .

    It's frustrating I know as like you it feels like nothing is working , I hope you find relief soon take care Paul.

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  • Posted

    Thanks guys I'll mention that tomorrow

    I have been referred to the neurosurgeon mr Flint now but after speaking to his secretary seems the earliest appointment is end of June/ July. So until then need something to help as it's all just getting worse! Just horrible isn't it x

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  • Posted

    Hi Mrs Murphy

    Yes it's awful living with pain and many symptoms every day , like Helen said you really need to get onto your neurosurgeon asap and keep bothering them as it's the only way we can take steps forward as I've found.

    You make plenty of noise and you will be attended to so dig in there hope it comes round soon take care fingers crossed Paul.

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  • Posted

    Hi Rachel,

    Is good you are able to speak to Emily, perhaps you need to write to Mr Flint even if you have nto seen him yet, ask his advice if he can suggest any kind medication that can help you..I have all of that medication you stated above..none of them help me at all, finall my Neurologist asked to stop it all, then him nd my fisrt NS SUGGESTED topiramex and deluxitine..the first week start with small dosage..(did not work) then increase to 30 ml (Delux) then 50 nl (TOPIRAMEX) it start working for me..for a period of 6 months..then I also seen ND..that when I start taking supplements such PLUS magneisum oil after 90 days (with my health caqare professionals advices) I slowly-slowly taking off all the drugs..and carry on with supplements..and magnesium oil..2-3 litres waters /days, walk 15 mnts daily..stopped working...here I am waiting for surgery with Mr Flint (God knows when he fit me in???) And just to let you know..sometime we are so desperate to get anything just to make us bareable so we take anything..but the drugs..its only there to support temporary..the side effect as well its no good (have a look at the leaflets providing on their packet)and mke sure you tell your gp if you suffer badly..your gp should really there to help you out..dont suffer in silence..what we are experiencing is not just ashtma or flu..we are experiencing a serious condition..you got to make sure they are aware of it..so be assertive to your gp...SO WE HE ARE  HERE FOR YOU...

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  • Posted

    Well just a little update I went to the doc today and he has prescribed Gabapentin 300mg and Prochlorperazine 3 times a day. Wants me back in next week to see if there is any change with it all. He is also calling dr flints secretary as he said this is urgent and I can't wait until June/July to be seen as the scans and symptoms show how bad it's getting really quickly so that was a relief. Nice to have someone on my side for once - such a battle with this disease x
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    • Posted

      Oh, that is good, yeach Gabapentin to be good, just make sure watch your appetite (LOL)..and prochlorperazine is good to stop the dizziness..so..hopefully Emily (Dr Flint'PA - she is really nice) manage to squize you in..they alwayls try to help patients if they can..but as you can imagine..he is national chiari specialist..so lots of patients from all over the UK being referred to him.so can you imagine..it took me ages to be seen by him..even I am still on his waiting list for the OP... well GOOD LUCK..keep me up date..and see how are you getting on with these two drugs.......
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