pain seems worse now after epidural

Hi all

I just want to say a personal sorry to you Jess, Angela and TFU for not replying to very many posts, I do check in but don't reply much. Just cos I'm not sure what to say sometimes, so I guess saying something is better than nothing at all :D.

I do feel for you guys, and now 'No Regrets' Russ who's still suffering too. I don't know how you guys maintain such a good sense of humour through it all, but I suppose they say either laugh or you'll cry.

If it's any consolation, I seem to have taken a slight turn for the worse. My back ache is back, making it difficult to move around again. The back ache was there when I first did this, then moved down my leg and since then my pain has always in my buttock/leg but kept at bay by that good old gabapentin. I've been taking pain killers again these past few days.

I've got my pre-op assessment next Friday but still no op date yet.

Sorry, ended up a little update from me too :D. Didn't mean to hijack the post or anything.

Sending you all lots of hugs, I'm just in shock as to how you're all suffering so much.

Love

Jude xxx

No Angela, I understand completely what you say, we can't think that we'll be like this for the rest of our lives, it really doesn't bear thinking about does it, especially with our beautiful kids who don't deserve this. So hard to think positive but try we must.

I'm sorry to hear that the morphine isn't working yet, but give it time. I was taking that like vodka in hospital :D and it did have its effect eventually. I really hope it does start working for you soon.

And you're right, this site is a blessing but also scary sometimes too, and I suppose I say the latter cos I'm one of the pre-op guys with hope in my heart that all will come good and life can carry on as it was before this hit me.

I do hope you'll start feeling the benefits of the morphine soon, I really do.

Love n hugs

Jude xxx

Hi Angela,

sorry to hear it doesnt seem to be getting any better, like Jude I cant really offer any words of wisdom but I do know a TENs machine helps, as does just an ice pack but that soon wears off.

Apart from that, I dont know what to suggest, although I could do with listening to myself sometimes :-)

As always, u know there are always people here and u must believe it will get better although I know at times that seems so hard to believe.

Oh and if u just wanna shout, come on here and type in CAPS, that might help :oops:

Russ x

[quote:3a7a8d4f07=\"Angela (Teesside)\"]Hi Melbi,

Hi and welcome to this site. I'd like it if you could send me a link to the chatroom you told me about, I think it helps chatting to other sufferers. I was actually thinking of trying a TENS Machine my Doctor thought it was a good idea too. Thank you.

[b:3a7a8d4f07]Hi Jude,[/b:3a7a8d4f07]

Thanks it's good to know I've got fellow sufferers to chat to who understand what I'm going through, I'd be lost without this site. You're right my Immune System is at rock bottom, I seem to be catching everything that goes.

So far the Oramorph hasn't done anything for me, I suppose it'll take a while to get into my system. I just keep thinking that with my luck, I'll probably never recover from this and I don't think I can cope with staying like this for the rest of my life. :cry:[/quote:3a7a8d4f07]

Hello again Angela

You will need to register with Patient UK (free) so that I can pm you a link and password to the chatroom.

Melbi x

Hey Melbi

Sorry but is it for anyone this chatroom, when I say anyone I mean could I go into it too :-)

Russ

Hey Jess, Angela, TFU and Jude

Jude u said what I was thinking, I just didnt know how to put it in words, I had got to that point where I did not know what to say for the best so said nothing..... ooopsey

Can I just say though, in a sense its nice to see everyone still here I just wish it was under different circumstances, so hi guys :P

K nuff said

Russ x

Hi Russ

Yes the room is for anyone who is registered with Patient UK.

The reason you need to be registered is because I can't pm unregistered users the link to the chatroom.

The chatroom has been set up (temporarily) for anyone who wishes to chat with fellow PUK users about their condition or just to have a chimwag.

Obviously, to help keep the room in an orderly manner and to minimise the risk of disruption, confidentiality, and abuse of the room, people have to be registered with PUK and also provide a valid email address to enter the room.

Anyone abusing the room or causing disruption can then be banned :shock: This can be done as a temporary ban (cooling off period) or a permanent one.

Some members may choose to discuss personal issues in the room and therefore all users are asked to respect what has been said in there and not 'broadcast', use it against the poster or cause offence in anyway or form.

Any complaints with regards to the room can be reported to any of the administrators or moderators of Patient UK.

You can also give feedback about the room here:

http://experience.patient.co.uk/viewtopic.php?t=19996&start=15

Best wishes

Melbi x

Hi Melbi,

I registered a while ago now onto the Patient UK site, but I've forgotten my username and password. I've tried several times to log on but I'm having no luck. :? Do you know how I can find my original details?

Thanks

Angela

Hi Angela

LOL you sound as bad as me! :shock:

Go to the log in page, just underneath the boxes where you put your user name and password there should be 'forgot password'. Click on that, put your user name and the email address you used to register and you should receive a new password.

Melbi x

Hi all

Sorry folks, I didnt mean to invoke guilty feelings or anything with what I posted.

The little cocktail of drugs affects me in so many ways now - paranoia, love, anger, eating, etc.

I took my first oxicontin thuirsday morning along with my other tabs, and felt like superwoman!!! I did all my backgarden weeding and digging over and never felt a thing!!! I then tidied my whole house top to bottom, sorted out the kids, did tea and by7:30pm, I was dead. My legs wouldn't work and the pain was UNREAL!!!!!!!! I know Iwas extremely stupid to do all this, but it was like an urge took me over and I couldn;t stop it!!

Is it not enough that I am getting worse not better, that I have to do this???? Friday I was in pain all day and rested. I staggered my early tablets and didnt get that feeling. I had my acupuncture at lunch, and she said all my muscles are in major spasm and my spine is curved the wrong way, and after it she said she notied a difference, and so did I.

Pity it doesnt last long.

Jude, I hope you feeling a little better, cant believe you haven't had a date for your op yet, surely you shaould have heard by now if you have your pre-op date?

Hey Russ nice to here from you. Sorry you in pain again, have you told your GP etc about the pain? If it gets worse you#ll have to take something or the pain'll rule. Know how you feel though about seeming to moan all the time - I have to do this on here or I will end up in a dark place again, this is therapy to me.

Angela, It does seem to be you , TFU and me lately getting worse.

Compared to you 2, I am the newbie, and I read what you 2 put and wonder if I'll dstill be bad in a year. Physio said a bout 6 months to get anywhere near normal movement, but then what? And things aren't going well now as it is. Worse by the day. As my nan says 'we need putting in a bag and shaking up' hahahahahaha.

Jess

to tfu

Oh my god i really thought it would be all over soon i cant beleive i will be like this for so long but as you say its best to know going back to Dr tomorrow he is going to have to change my meds iam in so much pain.

Also my manageress has told me to go sick as i was really bad last night at work but i must admit we were thinking i will have op in next through weeks and come back to work after dont think they know how long i will have to have off.

Does it also depend on were you live .

Thanks for letting me know

Speak soon

Stacey

Hi Melbi,

The thing is I can't remember my user name or my password :oops: I'm hopeless I should have written it down, any suggestions how to get onto the site.

Thanks

Angela

Hi Angela

You should receive and email tomorrow from PUK confirming activation.

Details should be on there!

Failing that, if you haven't received an email by tomorrow evening try registering again. (and write it down lol)

Melbi x

Hi Jubilee

There are sone real sad stories on here at the moment (god love the guys that havent been as lucky as me) so I thought I would let you that most of the time the op (if you have one) is a success, I has a discectomy for a large bulging disk L5 S1 2 years ago and have been PAIN FREE ever since! There were lots of people like me who used this site back than and prety much all of us saw success with our operations. I did have the nerve root injection but it was a waste of time for me but again not for everyone. Good luck with your treatment and if you belive the op is the only way for you now keep pushing your docs, surgeons etc as they will not rush if you dont keep on at them.

I Hope your out of your hell soon, Raine xxx

Hi Guys,

Just wanted to say \"sorry\" too for not replying..I think sometimes I don't know what to say..and feel helpless that maybe what I do say will not help you to feel better..I do look in almost every day and want you to know that I wish you well and hope there will be light at the end of the tunnel soon :hug:

Just wondering....have any of you, TFU, Jess and Angela, been offered hydrotherapy to help with your situations? I know it's not going to \"fix\" things but it may help? I found it really helpful last year when regular physio made the situation worse.

Take care,

Jules xx :D :D