Pain/severe ache in Upper arm muscles

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Hi I'm 39 year old with ckd and diabetes my kidneys are working at 18% I suffer with all the symptoms of more advanced ckd ... just would like to know if anyone has had these problems I have weakness in my upper arms with pain and severe aching in the muscles I've had this for about a year and it is constant I can't get rid of the pain it keeps me awake at night ..I've discussed this with Mr kidney specialist nurse but she says it has nothing to do with kidneys but after reading many posts on the Internet there seems to be many people having the same problem any info or help would be great thanks

Darren

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  • Posted

    Hi,

    These nurses make me laugh, how do they know.  Tje pain you describe is to do with your condition and it is either your vit D is not right or you have issues with calcium. It is like having constant flu but without the cold symptoms.  Aching in your muscles and bones and it is horrible.  It could also be to do with phosphate levels.  Do you know what your blood results are for the above and are you on vit d tablets.  If it is too low or too high you get these symptoms also if your phosphate is high you get this but you would know if your phosphate was high as you would be itchy as well as achy lol.  I had this a lot so I feel your pain.  I have just had my transplant and there are a lot of things about that they don't bother telling you could happen.  Ask about all these things and nurses shouldn't be advising you as they are not qualified they are nor a neph or going through it.  Good luck keep us posted

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    • Posted

      Hi thanks ever so much for the info it's so good to know it's not only just me getting these symptoms I'm actually taking vitamin d tablets I'm not 100% sure about my phosphate I know few months ago I was itching quite bad but that has eased now I will ask about my calcium I'm not really sure about that but I have very high potassium levels from my last bloods I've just gone on transplant list now for double transplant pancreas and kidney so I'm waiting on that but thanks for the info I'll check back in with calcium levels in a day or two

      Darren

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  • Posted

    Get sedimentation rate (ESR) tested with next blood work.  Shoulder/arm pain could be a symptom of PMAR (Polymyalgia Rheumatica). The treatment is prednisone, with gradual tapering.
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    • Posted

      Hi thanks for the tip I'm having bloods done next week I'll ask for this too be checked at the same time I'll keep posted

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