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I had had itching since my teens but only went to see a gynaecologist when I was referred by A&E. I split during sex and bled so much I thought I needed stitches. Having sat through a nightmare of humiliating questions about my sex life they sorted me out and sent me back to my GP. She referred me onto other gynaecologists who seemed to take no interest at all. It was only when I went private that a biopsy was taken and I was told I had a neoplasia. At this time, in my notes, my consultant wrote that histology showed LS but he didn't tell me for another year!
I had a fairly large excision of the perineum and was then left to get on with it. I have been having 6 monthly check ups and 3 months ago I started on clobetasone butyrate 0.05% cream which i have found soothes the itch.
What I find most distressing is the pain on intercourse, made all the more worse by the fear and anticipation of pain and splitting and bleeding. This broke my relationship and I have found it difficult to start a new relationship - I have to decide whether to either tell someone about my \"problem\" or not and hope it goes ok.
I find it very difficult to talk to people about the condition. My friends know that I have a gynae problem - it's a bit difficult to hide it when you're unable to sit down or walk properly because of stitches but I've only confided in a close handful what the extent of the problem is. I feel embarrassed telling people in case they assume I'm dirty/infectious.
Does anyone else have experiences like this? Does anyone else have problems telling people about their problem?
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