Pain when sitting or even lying down now!

Posted , 8 users are following.

Pain when sitting.....15yrs and counting!

I have got pain when sitting. Burning pain between buttocks and rear hamstrings. Had the pain for more than 15yrs.

Makes me very down and also very very anxious as I dread sitting!

Seen doc tons of times over the years. Had creams etc. Nothing works.

He said it is stress related!! Ok, it can get worse when I am stressed but it's the pain that is stressing me.

I have many stretch marks in that area from when I used to weight train when younger (not properly!) The pain seems to be coming from the 'open' part of the stretch marks where it is 'broken skin'.

Recently the doc put me on Pregabalin. I decided to get off that as side effects not nice for me. Only 3rd day trying to come off it (75mg twice daily down to zero! Bad move due to withdrawal symptoms but I aim to persevere).

I tale Escitalipram 20mg for anxiety / depression.

Doctor sent me for blood test this week to see if anything shows up plus to check some vitamins etc. I don't eat healthy so recently started to take:

Vit B

Magnesium

Cod Liver Oil

Vit C

Tumeric

I have ordered 5-HTP too.

If it were not for my child I would not be here as pain is horrible to live with.

Doctor is useless. He thinks I should not dwell on the pain or think about it. Really!

Anyone have similar pain?

Any advice welcome. Thank you

0 likes, 18 replies

18 Replies

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  • Posted

    Hi,

    i know this post is from 4 years back and i really really hope that you will read this message and reply to me, i would like to know whether you have found out your issue and recover from its?

    i am having this disability to sit for about 7 months now, gone to doctors to doctors, 4 colorectal 2 urologist, 3 spine specialist.

    My MRI of rectum and pelvic show all normal, MRI of lumbar spine show only mild L4-L5 bulged disc which spine specialist suggest might not be the cause of the pain. blood test, urine test, Colonoscopy show all also normal.

    Lastly last week based on suggestion from my last colorectal based on my photo of my anus suggest that i have anal fistula and perform surgery. it is 1 weeks past and when i try to sit the same symptom come. the pain is in buttock, thigh, and bit of lower back, even the sitting is only around 5 mins.

    Now not sure because of standing to long due to disability to sit or any other issue my heel, ankle will also feel sore.

    i really feel depressed and really sometime thinking like you say if it is not due to my daughter and wife might not be here as the pain and the suffers.

    Hope you found your cure and share with me after these 4 years.

    thanks very much

    • Posted

      Hi there,

      your symptoms are incredibly similar to mine. same as you , my tests are negative but i have this unexplained sitting pain. one question i had, how come they diagnosed your fistula while the MRI was negative?

      anyway, would be really nice if you update your situation as I seem to lag behind you in this unknown affliction a few months! and your input will be valuable. I'll have appointment with another specialist soon and will update as well.

      hope and pray for healing for all

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