Painful legs

Posted , 6 users are following.

For the last couple of weeks I have suffered from my legs jerking in bed and i then wake up with painful legs. i have seem my doc and he has suggested that this might be caused by gabapentin. I have been taking just 300mg for about a year. The doc has suggested that I reduce the gabapentin which we agree probably does not help the problem it was prescribed for. I am suspicious that for some unknown reason I have suddenly developed RLS and periodic limb movement. Has anyone got a view on the gabapentin possibility? I will see the doc again in a couple of weeks to see whether the symptoms have changed after thye gabapentin reduction. My puzzle in part is that for some people with RLS gabapentin is prescribed

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  • Posted

    If your legs jerk without being preceded by an irritating mental inclination to move them, I doubt it's RLS. Gabapentin is associated with myoclonus, which you may want to discuss with your doctor.
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  • Posted

    I do find myself agreeing with you, in that to the best of my knowledge Gabapentin is normally associated with other condition such as peripheral neuropathy and epilepsy, so by what strange mechanism it has been prescribed for RLS is a mystery to me.

    Unless they deem it to be such a versatile medication that they are trying it on other things now such as myoclonus which is a symptom of involuntary muscle movement.

    Who know how these people think?

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  • Posted

     Think we all, have different symptoms for RLS. Mine is a burning in my legs was only at night or when I rested but over the months had gotten worse. I have had  the tests  mri. Lumbar puncture and taken most of the meds peop,e mention in here but nothing helps . I have recently purchased halcyon copper braclets which I wears all day and also after seeing a neurologist nurse she recommended I take 500 microgram of clonazepam tablets just the one a day . I have also started walking every day so do about 12 miles a week and also I have some bmt trainers expensive but certainly seem to help walking not that I have problems with that anyway. Well a mixture of the things mentioned over 4 weeks and not going to say the burning has gone but it's i definetly 90 October better than I have felt for nearly 2 years . These tablets are for epilepsy which I have not got but think a lot of the ones like pregablin  stc are used for this anyway . I hope this helps . Maybe ask your doctor what he thinks of the meds I have mentioned. Of course we are all different and react to different things . Good luck
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  • Posted

    I am on Gabapentin 300mg nine capsules daily and with my Back and leg pain also use 80mg Morphine and 1000mg Naproxen with Oramorph 10mg/5ml as required on top of the usual heart medication of aspirin/ramipril/simvastin/coracten.Life still feels crap and no relief for most of the time so what are the options,they say the only way is up.
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  • Posted

    I am not sure about the protocol of replying to your own discussion but an update! My doc has now given me Clonazepam either 2 or 4 mg per night depending on need. 2 mg was enough to wipe me out so it was great to stay asleep but I was in a fog all day and still with painful legs. A couple of nights ago I thought I would try without the tablet but I was awake most of the night with my legs jerking/twitching for hours Paracetemol help the leg pain but I am spaced out. I see the doc again tomorrow
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  • Posted

    Hi Martin 

    after trying all the normal well if you can call them that , pregabilin , Gabapentin and several more which quite honestly sent me over the edge in more than one way . I was given clonezapam 0.5 mg nightly . I have to say they are amazing . The pain at night and day has not disappeared but definetly 90% better . Keep going with them but maybe lessen the dose. 

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  • Posted

    Sorry it's me again with another update. i had a host of blood tests today but meanwhile the doc has put me on a course of Pramipexole. I have enough Clonazepam to be going on with so will wait until the blood results are in before switching meds.
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