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painful spots - not sure if it's related to PMR

Posted , 6 users are following.

FlipDover_Aust
FlipDover_Aust

Hi everyone, still learning stuff after 18 months of this rollercoaster.....

From the very start I've had really sore spots (mostly in my legs) that I don't really notice until they throb and start hurt, and then I rub them - sometimes they are so painful I could cry - they burn when I touch them. I know, simple solution - don't touch them - but I am almost compelled to rub them - hard! One of those pleasure/pain situations.

They are slightly swollen - I do wonder if it's inflammation build-up.  they are usually in my calves, thighs and inner knees.... but I also have them on my upper arms and elbows. They come and go quite randomly.

Any ideas?  is it part of PMR? Fybromyalgia? Myofacial pain syndrome?

0 likes, 9 replies

9 Replies

  • denisep911
    denisep911 FlipDover_Aust

    Posted

    I've been diagnosed with fibromyalgia as well and you do have certain places and points where there's certain pain and sometimes sharp and very tender to touch

    Check with your dr

    • FlipDover_Aust
      FlipDover_Aust denisep911

      Posted

      Yep, that's what it's like. He did say I might have fibro, and prescribed Lyrica, but never mentioned it again.

      I can't distinguish between PMR and fibro given I appear to have developed them at the same time.

    • denisep911
      denisep911 FlipDover_Aust

      Posted

      Unfortunately there's no blood work or any kind of lab to diagnose fibromyaglia

      I think sometimes they give you a diagnosis because they don't know what it is ??

    • linda17563
      linda17563 FlipDover_Aust

      Posted

      Don`t know if my last message got posted or not...this is doing weird things today!

      ?Anyway, I know the distinct difference between fibro and PMR pain...fibro is tender/burning....can`t bear massage....too painful.

      ?When my doctor examines me....the "tender spots" with fibro, I nearly hit the ceiling.....check website, you will see where they are....

      ?No, there is no blood test, that`s why my doctor knew something else was going on when I got PMR, it showed raised markers.....

      ?hope this helps....good luck......

  • Flutterbie57
    Flutterbie57 FlipDover_Aust

    Posted

    I was diagnosed with Fibro nearly 20 years ago. Those little swollen internal lumps (like little raw nerves) have always appeared when I have a Fibro flare up. The pain subsides much quicker if you massage them till the pain is not so intense. Massage gives me much quicker relief. I have had PMR for 18 months now too. How is your excercise going ? I am trying to do ,3 10 min bouts, but those little nerve balls have appeared in my feet along the bones  to my toes.
    • FlipDover_Aust
      FlipDover_Aust Flutterbie57

      Posted

      cool, thanks.... I get a weekly massage and my therapist massages them for me - thankfully, as I can't reach some of the spots! I always feel fabulous afterwords - like my blood is flowing better - I guess it is!

      I'm still 'thinking' about exercise! lol You can't rush these things you know.... it's nearly spring here - the days are getting 'longer'....it's been a miserable winter. Cold and wet. A bit like living in England I imagine!

    • Flutterbie57
      Flutterbie57 FlipDover_Aust

      Posted

      I am across the Tasman and  we get your cold wet weather when you have finished with it.confused Our snow has just landed. I have only done a few 10 min dawdles and i suspect I am now having a flare. I am reasonable active, so can't believe I am going backward. I started out so slow  with a little extra, so I wouldn't upset anything. Frustration !

  • paula63201
    paula63201 FlipDover_Aust

    Posted

    Sounds like Fibromyalgia. I have friends who have it and I was also initially diagnosed with it and did a lot of research as a result. My first Rheumatologist prescribed Gabapentin to treat it, but it did not help me much, as I really had PMR. (I went to see a different Rheumy as I was not satisfied with the Fibro diagnosis and she diagnosed PMR.)

    My friends with Fibro take Gabapentin and it helps them. It is diagnosed via symptoms: no blood tests, except to rule out other things. I would speak with your doctor about diagnosing it and getting treatment.

    Swim therapy in a warm/heated pool is also helpful for Fibro. 

    All the best,

    Paula

     

    • FlipDover_Aust
      FlipDover_Aust paula63201

      Posted

      I am incredibly lucky - I have a heated swim spa (a HUGE spa) so I can get in every day.... and stay as long as I need.

      I'll ask my Dr about Gabapentin next time I'm in there. thanks :-)

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