1. Community
  2. Bones, joints and muscles
  3. Methotrexate

palindromic rheumatoid arthritis

Posted , 7 users are following.

timothy11402
timothy11402

After about 10 years of observing my RA symptoms, my rheumatologist told me I have a fairly rare form of RA called palindromic RA. My symptoms are that the pain I experience is not necessarily symmetric (e.g. both wrists) but may occur on one side. Also, pain and swelling travels around in my body. For a month or more, it might be my right knee and not my left. Then I will have tendon inflammation in my groin for a couple of weeks. Then it might move on to my left food. Never a dull moment trying to predict where it will be next week. Has anyone experienced this? I am currently on mtx and hydroxychloroquine. I have found that turmeric really helps and so does pineapple juice and blackcherry juice.

0 likes, 19 replies

19 Replies

Prev
  • lisa63151
    lisa63151 timothy11402

    Posted

    Hmm.....I had similar symptoms last week when I was off methotrexate due to my liver function test. It went around everywhere throughout the night. It could move from right hand in the morning to left shoulder by the end of the day. I'm going to see another rheumatologist today. I went back on 10mg methotrexate last week but it didn't really ease my pain so I had to take 20mg of prednisolone on top of it. Sigh.....a long journey of pain ahead. 

    • timothy11402
      timothy11402 lisa63151

      Posted

      It took me about four years to get my RA under control. At first I took Mobic and hydroxychloroquine. About 2 years later he put me on mtx. Tolerated it well. But every so often mr doc mentions a biologic. I really do not want to take it. My next project is to go on a paleo diet to control inflammation. One problem: I do like an occasional drink. Otherwise I am very healthy.
  • julie98124
    julie98124 timothy11402

    Posted

    Hi Tim

    Looks like I will need to find a perfume that covers and does not clash with the smell of damp wood !!

    I feel encourage if I have to take mtx I feel like it is still early days for me regarding finding the correct medication.

    I have been taking turmeric and felt good so stopped steroids by 12 am had terrible cramps in my feet and legs I could not sleep so took steroid. Slept after 2 hours woke 6 am; flare up in my hip. Not coming off again until I have seen Rhematologist. I will keep taking turmeric.

    Enjoy last of the sun

    Julie

Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.