Pammie, JustJayne, Morwe, Mrs K and Kate:11 March 2010
Posted , 4 users are following.
3 years ago in November, five people who posted on this site - got together and formed pmrfighters. On 10 March 2010 a new Charity will be launched called PMR-GCA UK.
The five people who posted on the site - still do - and have learnt a great deal since that time.
We will all be together in London the day after (11th) and from 11am - 4pm will be in the lounge bar at the Premier Inn County Hall, Belvedere Road London, SE1 within walking distance of Waterloo station and loads of buses.
Email us on this site and let us know if you might come to see us and have a chat. There are no freebies, pay for your own liquid refreshments. We just thought you might want to meet up with other people who have PMR and GCA.
0 likes, 5 replies
Ms_JH
Posted
Ironically I was visiting London in January and was knocked flat on my face in an underground station by a young woman who ran in front of me. I was cut, subsequently sported two black eyes, and probably cracked a rib or two. I wonder if that very hard fall could have contributed to the rise in my CRP? Has anyone had experience with a relapse following a bad fall or other accident? Best wishes to all. You are the greatest.
Jill
mrs_k
Posted
Yes, I did - I fell and my CRP shot up like nothing on earth. Luckily no other symptoms of GCA appeared so after much discussion with my GP, we put it down to the fall and held off putting up the steroids. One month later, bask to where it had been.
My CRP also shot up way beyond when I had a kidney infection. So now if anything goes awry, we put the GCA on one side and pretend I have not got it and treat whatever and wait and see of the GCA symptoms appear. So far so good. But then I have not had anything since the kidney infection. Fingers crossed.
Maybe our paths will cross some day.
MrsO-UK_Surrey
Posted
It sounds as though you are at a similar stage of PMR to me - for me 4 years PMR (the first year undiagnosed and therefore untreated) and another 3 with GCA/PMR, and steroids, and, like, you, I have just reduced from 3, taking 8 weeks this time to do the tapering, finally reaching 2 about 10 days ago. I've had a few painful days, mainly with the top of arms and neck area but thankfully today that's eased. I have blood tests and rheumatology appointment next week so I'm crossing everything that my body is adjusting to the lower dose.
As to your question re falls, yes I have had a couple of falls and like you, both have resulted in relapses with increased CRP/ESR and pain. In fact, I put my initial PMR down to injury to an already damaged spine following a heavy tumble off a train. A station near Epsom in Surrey has the most unusual deep drop between the train and the platform which has had publicity but apparently nothing can be done about it (or they won't spend the money!!!). It was dark and I wasn't familiar with the station, and, no, I hadn't been drinking :wink: just lots of cuppas at afternoon tea at a posh London hotel celebrating my friend's birthday!!!
I remember a long time ago someone posting on this site said that she thought PMR was caused by soft tissue injury, which could be borne out by my accident, and I do know of people who have succumbed to PMR following surgery.
Yes, it would have been lovely to meet you in London on 10/11th March, but we will post and let you know all about it, I'm sure.
Very best wishes and do hope you are successful in being PMR-free soon.
MrsO
yvonne11dickens
Posted
Am presently trying to reduce steroids from 30mg a day down to 27.5mg (got down to 15mg before Xmas) and am having 1st appt with Rheumy on 22 Feb, although from reading postings, it seems to be a case of more steroids when pain is bad and less when it isn't - its your choice!
Interesting reading about could injuries start/affect symptoms. I had a bad fall and broke my wrist just over a year ago and had to have it plated and pinned and it was not long after that I started with PMR although it took 6 mths for diagnosis and then it was me who suggested the condition to the Doctor!
Anyway best get on with some work and especially as last week my 2 bosses told me how well I am looking to which I gave no reply but just smiled sweetly!!:lol:
Ms_JH
Posted
--Jill