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Pancreatitis

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jordan11142
jordan11142

I was diagnosed with cronic pancreatitis when I was 5 years old, I am now 19 and I rarely feel any abdominal pain. I also am not diabetic and I would like some more information on why I got this diagnosis? Can anyone help? Thanks.

0 likes, 8 replies

8 Replies

  • wildjflippin
    wildjflippin jordan11142

    Posted

    what tests were done to determine this? 
    • jordan11142
      jordan11142 wildjflippin

      Posted

      MRI/CT scans, blood tests and samples... I'll have to ask my parents as they know more about my diagnosis. I had around a metre of my bowel removed and most of my pancreas too.
  • JoBlack1
    JoBlack1 jordan11142

    Posted

    I would suggest getting an EUS to see if there is any new pancreas damage.  If you don't have any pain perhaps it was misdiagnosed or went away (although I've not heard of this being the case with any one I know). Without an EUS or updated (high resolution) CAT Scan along with perhaps blood tests for amylais and lipase - it's all speculative.  Good luck.
    • jordan11142
      jordan11142 JoBlack1

      Posted

      Thanks, and I have asked my doctor for scans but he felt it was never needed. Forgot to mention I had metre of my bowel removed and most of my pancreas. Thanks for your input 😊
    • JoBlack1
      JoBlack1 jordan11142

      Posted

      I, too, had a pancreas tail resection (not complete removal) and now have a large cyst in the head.  My pain is random so I take Norco for pain but also take daily enzymes (Zen Pen) to help my food digest better.  What compounds the issue for me is diabetes.  It might be something you should watch out for but sounds like you have it all under control!
    • cathy_94688
      cathy_94688 JoBlack1

      Posted

      Hi

      I have a question. Can chronic pancretites pain comes and go?

      How does the pain feel like? For example mine radiate to both sides and goes to my back then up to my shoulders. And sometimes is in front too. I have constipation problem as well. I Went to 3 diffrent GI doctors but none of them belive that I have this problem beacuse all my tests comes back normal. But I tell them about my reserch online that chronic pancretites is not easy to be diagnosed they say nope you don't have it. Then I ask them what is pain that I have they say we don't know.

      I am confused .

      By the way, I had my galblader removed 3 years ago. The Surgon performed cholongiogram on me too. My surgery was a difficult one since my galblader was inflamed and infected. So I don't know if he left any scars there. But all my scans MRCP and ulthrosounds are normal. But I have pain. I can't sleep on my left side beacuse it gets so painfull.

  • JoBlack1
    JoBlack1 jordan11142

    Posted

    First and foremost - be blessed and grateful that you are not diabetic.  I am along with my chronic pancreatitis and that seems to be a serious issue as it relates to food digestion.  If you rarely feel pain you have likely learned what your triggers are and avoiding them!  For me, sleep, pain management, watching my diet and a positive attitude seems to be my medicine.  I would revisit your doctor and ask for tests to confirm that you still have chrinic pancreatitis.  To my knowledge, it doesn't go away but I would be happy to hear otherwise!

     

    • JoBlack1
      JoBlack1

      Posted

      Jordan - I missed a couple of posts/points.  I, too, had my gall bladder removed about five years ago due to stones.  My father had heard that when that happens it is really calcium that has to go somewhere and it frequently goes to the pancreas.  In my case, this held true and I - also have a pancreas resection due to calcium deposits.  Now I am struggling with the other half that remains (the head) which has a large 10 cm cyst in it.  I previously had a celiac block for the pain but it didn't last for long. My pain has returned on the left side (which is where part of the pancreas was removed) and feels like a quick danger.  It's odd since that part of the pancreas is gone - I wonder if my body still believes its there and rejecting the resection.  

      Like you I am frustrated with doctors recommendations to go to a GI but with constipation it may be worth your while - in case there is some type of blockage.  I don't have those issues yet my pancreas doctor keeps recommending I go to a GI doctor for IBS.  I did so - but that doctor said no IBS.  

      The frustrating part is that the pancreas specialists - once he operated on the resection - seems to want to ignore that pain still exists and wants to blame it on IBS yet I have no bowel type symptoms.  

      I have to go to my family doctor for pain management since no one in our area is a specialist on pancreas pain management only sports related injury pain management.  

      Chronic pancreatitis is a frustrating disease...for me, rest, water, pacing my life, diet type foods and short walks -- with great family support, makes it all bearable.

       

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