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I had been having my lipase levels checked regularly since last January (Jan. 2016) as part of a monitoring program for a drug I was taking. My baseline lipase was slightly above the upper limit of normal (70 U/L where the upper limit of normal is 60). Over the course of about a year and a half my lipase levels rose to 144 U/L. Since I was completely asymptomatic, my doctors advised that I continue with the medication. That changed back in June of this year when the lipase went up to 177 and I started feeling nauseous. My doctors took me off the medication (I'm not not on anything now) and told me I had drug-induced pancreatitis. They told me to eat low-fat to rest the pancreas. (I haven't had any alcohol in quite some time.) They did not tell me I needed to eat extremely low fat or I risked having problems the rest of my life, but that seems like what it is happening.
Long story short, since getting off the medication, I've kept getting better about my diet and yet my lipase numbers keep risIng and I seem to been getting sicker ... or at least more and more sensitive to fat (and other things too). Back in June, before I knew the symptoms were pancreatitis (before the doctors told me to eat low-fat), I had a really big lunch at aTurkish restaurant and felt bloated and strange for a day and a half after that. Then I got better and was eating my typical fatty diet again without any problems for a week. Then they told me to eat low fat. I reduced a few things, but over did it and got sick again. I didn't radically overhaul my diet at this point, because my understandings was that the medication had been somehow toxic to my pancreas and now that I wasn't taking it anymore, I would heal on my one. The low fat diet was just to help things along, not the main pgoint not. Anyway, I reduced my fat intake again, was better for a while, then got sick again. This happened about five times in all. The last time I had a major flare-up was about three weeks ago. I had been doing well, so I tried to advance my diet a little. I had been having no more than 12g of fat/day and no added fat at all. So, I added 1/4 tsp (very small amount) of olive oil and felt fine. So, I added the same small amount to my salad the next day ... and boom ... I knew I had gone ne too far. I had some sudden, sharp pain in my upper left abdomen towards the middle. The pain went away, so I decided to scale things back. I would eat very low fat the next day ... and no more olive oil at all! So, the next day, while I was eating my very low fat lunch, I suddenly felt extremely sick -- sharp, unrelenting pain again in the upper left abdomen, radiating to the back. I was so sick, that I had to leave immediately and somehow drove myself home. I took an ibuprofen and lay on the couch and started feeling better within an hour.
so, to summarize thus far: Back n June while I was still taking this drug which has supposedly brought about my pamcreatitis, I ate a whole Turkish meal and just felt bloated, but 2 months after stopping the medication, I have a 1/4 tsp. Of olive oil and all hell breaks loose.
I recovered from from that last attack by reduced no my diet still me more. For the last 1 1/2 weeks, I have only eaten one of 11 foods which seem totally safe to me .. and slowly but surely the pain, then nausea has completely gone away again.
i had been feeling totally forgotten he for about three days, when I had and their blood test. I was really hoping that finally my lipase numbers would go down.Every other time, I've gotten a blood test since June, my lipase numbers have gone up, but then again, I always felt sick when I had the test. This time was the first time in a long time I was feelings no great. And guess what? The numbers were the worst I've ever had. My lipase is now at 249, higher then all the other times I was actually feeling sick.
so, what do I do? My gastroenterologist is still saying "drug-induced pancreatitis" although I stopped the medication over three months ago and my lipase has continued to rise since . I will see my primary tomorrow, but I'm not sure what he's going to tell me. I've had a CT scan and an MRI and they both showed my pancreas and gallbladder as being normal.
so, do I keep on with my pathetic diet of 11 different foods until my lipase numbers come down ... which will be when? 5 years from now?
How do do I know when it is safe to advance my diet again? I thought I was playing safe before, but apparently not safe enough. With just 1/4 tsp of olive oil, I had an attack it took me over 10 days to recover from.
why am I getting what rose? Am I getter no worse? Should I try to get a second opinion, or will this be a waste of time?
Do do I really have drug-induced pancreatitis like my gastroenterologist says? But why am I getting worse when I left the drug behind 3 months ago?
why were my blood test results the worst when I was feeling the best?
Most importantly, what he n earth am I supposed to be doing to get better? My gastroenterologist told me to avoid saturated fat and have a moderate amount of good fat. When I told him that I got sick on just a little bit of olive oil, he looked at me like I had three heads.
ive also noticed that I suddenly have all kinds of food sensitive items that I never had befr
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