Panic at 2am - my eyes are burning.

Posted , 6 users are following.

Well, my story is that I had a high SED number a week or so ago 120, and the dr was worried that I needed to to go to emergency if my eyes or head hurt, for fear I had the GCA.  She upped my pred to 20 mg and said get another test next week.  So I got my test yesterday and don't know the score yet.  But tonight I keep waking up and my eyes burn.  Is it just normal or am I in danger?  I absolutely hate going to the emergency room, as I have had to three times this year (due to cracks in the back).  Can any of you tell me what is meant by eyes hurting due to GCA?  Am I worried for no reason?

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2 Replies

  • Posted

    There are several on here much better informed than I am but, as I understand it, the sort of pain to worry about is in the head generally, not just localised in the eyes. Pain at the temple and when you chew are those most often mentioned. But don't take chances. If you are worried then go to the ER sooner not later.

  • Posted

    Debbie I don't know why your eyes are burning, I'm not sure if it's part of GCA. Certainly pain in your head and jaw and also around the eye area. Honestly tho if it doesn't go I would be getting it checked out. Please come back and tell us how you get on!

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