Pantethine
Posted , 8 users are following.
I've read that 600 mg of pantethine a day assists in the production of natural steroids. It would therefore make sense to me that you could take pantethine and this would then enable you to reduce the amount of Pred taken daily - has anyone tried this? Does it work?
1 like, 8 replies
Oregonjohn-UK sastew
Posted
iellen32 sastew
Posted
To replace the steroid, taking less of it for the alternative option I doubt it would be accepted.
i will google the question today, I will go online and of course let's wIt for the replies here!
Thank you for bringing this interesting question to the conversation.
I have GCA and I am on Pred there are three years.
sastew
Posted
iellen32 sastew
Posted
research ....and then I may come here to say something.
i love pineapple- I know it carries out of our system all the impurities.
As I said about the pantethine, thank you , sastew , for bring such an interesting subject to our discussion here!!
Take care.
Stay well
julian. sastew
Posted
The daily pred required to reduce the extraordnary inflammation of pmr is beyond what the adrenals are requred to produce naturally.
I can imagine (but don't know) that when we get down to lower pred doses and expect the adrenals to start producing cortisol again there may be some benefit.
No, I haven't tried it, and probably won't, unless there's compelling evidence my adrenals are not functioning as they should.
iellen32 julian.
Posted
I do not have any fatigue just the opposite!
If not for this unfortunate GCA of mine I would be flying instead of just walking.as I use to say .))
I always took for granted my good health and my perfect vision as well .
I had never thought on the possibility of being blind OMG.
I am so grateful and deflect extremely blessed for my vision due the proper treatment, the Pred , diet etc
Today I am a thankful person!
Good health and wellbeing to all ! xxxx
julian. iellen32
Posted
The adrenal fatigue I mentioned is more the adrenals being tired of making cortisol, something we wouldn't really notice without tests. Different to the pmr fatigue which we may or may not feel - in my case I felt it big time, it certainly slowed me down big time. Reasonably goo currently but wary of flair as I'm feeling a bit more achy/stiff/fatigued than usual..
,
Bottom line in all this though - if it helps without harm do it. My only exception is the pred where I accept(ed) a few short term side effects.
iellen32 julian.
Posted
As you say we adjust our life style the best we can. Yes, we feel better if we are able to follow the rules and in same time feeling pleasure.
A question: how long was your recovery time after your back surgery? I have a friend going through this ordeal.
Back to our subject. I take B12 ( do you?) every other day, I move, I do not sit for long minutes.
As I can see you are doing it right!
To keep my joy and to put fun on my activities is a must for me!
Fun and joy are medicines too!
Have a pleasant Friday!