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Hello everyone, I collapsed September 2017, was rushed into hospital where I had ct scan, I was told I had multiple blood clots, legs, spleen, kidneys, bowels and heart. I spent two weeks in critical care where I was not allowed to move, I’m now on warfarin for life!! 7 months on and i really struggle with exhaustion, is this normal? I have chest pains, back pains and still struggle to walk a few metres, is that normal, I’m also very paranoid thinking every ache or pain and I’m going to die, is that normal!!  Can anyone help me out 😩😩😩

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4 Replies

  • Posted

    Hi Paulette,

    Whilst I had a fair few clots, my clots were limited to the lungs. I can’t imagine what it must feel like to have them all over the place....

    On the recovery side - I was still pretty limited 7 months on, so I don't think you are abnormal. Just harder hit than many, so it will take a while. Also, anxiety is a very common side effect/symptom of PEs. Most on here have suffered it at one time or another.

    I reckon your body has a lot of healing to do, so it will take a while. You also have had the worst of it and the coldest and darkest part if the year, so the forthcoming longer and warmer days should help.

    I am keeping my fingers crossed that spring/summer will bring a measurable improvement for you.

    All the best


    • Posted

      Thank you for your response, it’s comforting to know I am not the only one in this awful situation!! I really hope that the warmer months ahead help with the healing process ! I just want to be who I was before, I hope you feel better soon 
  • Posted

    Hi again,

    Thank you for your kind wishes. I fear I may have unwittingly misled you when I said I was still struggling 7 months after I had my PEs.

    It is actually two and a half years since I had them and I am much recovered.

    Recovery was a long process, but steady. At 6 months I was not great, at 12 months there was a marked improvement. After 18 months I was able to walk regularly and after 24 months, I could do most things that I used to. Maybe not back to normal, but a decent “new normal”.

    Things that seem to impact my lungs are chemicals, dust, cold and stress. All seem to cause inflamation and discomfort. 

    Other than that, I would never have believed I could have got here 2 odd years ago, when I could barely walk across the room.

    Hope the information helps.


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