Parathyroid disease

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Could a chronic cough...several months...have anything to do with my condition?

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  • Posted

    Parathyroid symptoms can be lots of different things.  I didn't have a chronic cough, but did have a husky throat.  Brain fog, depression, exhaustion, night sweats, false labour....had lots of symptoms, but not a cough that lasted months.  It seems to be that fairly often sarcoidosis can also be present in people with hyperparathyroid though.  That affects the lungs so it may be worth asking the dr to check?  There are facebook pages for support groups for parathyroid too.

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  • Posted

    Hi Sandra- I have had a chronic cough for the last two years and been wondering whether it could be related to quite severe PHPT (2/3 large adenomas) that I've had for over 25 years (my PHPT was misdiagnosed as ME).

    I'm seeing an asthma specialist in a couple of weeks but also expect to have the op in about 12 weeks; so I'll be refusing treatment for the cough until after the op - just in case it is related to the hypercalcaemia or hyperparathyroid problem.

    Sorry I can't give you a definitive answer but hope it helps to feel you are not alone. 🙂

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  • Posted

    Hold off on worrying about your caugh till after surgery. There are so many unknown symptoms of this disease. I am six months post surgery and am finally getting my singing voice back after years of slowly loosing it.

    Hang in there and good luck with all your outcomes.

    Loving life again

    Julie 99798

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    • Posted

      Thanks Julie - that's good advice. Am really pleased that life has returned for you. I'm desperate to get my operation - it's soul destroying when I hear about people who get the operation within 3 months of their first endocrine appointment. I'm a year past diagnosis and operation is expected to be in the autumn - but I imagine I'll still be waiting at Christmas at this rate.

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    • Posted

      I am so sorry to hear about your wait. I had months to wait once I diagnosed defiantly and 8 years of we don't know. I still get the we don't knows because I had a very large adenoma and went into a parathyroid storm. This is a very traumatic disease to have and I am so blessed to be able to encourage you on I now feel great levels not perfect and don't know about long term heart problems but attitude is always a good thing and mine is this is not going to beat me.

      Julie

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    • Posted

      Hi Julie...what do you mean you went into a parathyroid storm?  I have heard of thyroid storm...and had tetany after my op, but haven't heard of parathyroid storm.  I had a thyroidectomy and parathyroidectomy in one op and got tetany because the hospital pharmacy was out of Vit D and so I was only given calcium without the Vit D to make it work.  Luckily I had heard a nurse telling a student nurse that the thing to look for with parathyroid ops was tetany, knew what tetanus looks ike and figured tetany would be similar...so when I got symptoms I pushed hard to make sure I was heard.  They ended up getting Vit D from another patient's supply until they were able to get more in and upped my calcium even more and I was okay, obviously.

      My voice also went very husky before my op but is now back to normal.  My op was 5 years ago now.

      Anne

       

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    • Posted

      Hi Anna,

      My para went from mild fatigue to all para symtoms full blown which included hallucinations and anxiety to the point I had to stop driving. It is when the pth levels get out of hand high and cause calcium levels to do a lot of damage.

      This started because I had lump appear on my neck and GP found low d (8) and ignored the high calcium, put me on 10000 ui and after two days I was unable to function heart racing and mental confusion stopped taking d looked up symptom and had GP get me an endocrinologist .

      After months of suffering because levels would not go down I had surgery. Pth went from over4000 to 80 and now about 40 a little low.

      All is well but osteoporosis so hopefully November scan will

      show improvement.

      Julie

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    • Posted

      Incredible the damage an adenoma can do.  I have wonderful bones, so when bone density was tested before my op, I was above the normal on my spine and on the top line of normal on my hip.  That was 5 years ago.

      I actually just had a bone density test today.  Haven't spoken to dr yet, but looking at the hard copy given to me, I am still well above average.

      As a horse rider who has had some spectacular falls without breaking, I knew my bones were good, but was concerned when I found out about the adenoma!

      Good luck with your bones Julie.

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    • Posted

      I had a bone scan 6 years ago and all was well. I was so shocked that in just that amount of time I went to the bones of an eighty year old I am only 56

      Julie

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    • Posted

      Do you still have an adenoma?  Or have you had your op?  I thought your bones would restore after your op?

       

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    • Posted

      Had surgery 6 month ago and regrowth is slow. I too was an avid horse woman but developed balance problems and one wreck too many finally broke some bones so I put myself on the ground and because of this silly parathyroid had to quit riding.

      I still have balance issues but am hopeful that my bone reversal will be successful. I will find out in November.

      I know my adenoma is gone and I am on a great road to recovery but my life has really been effected so it will take time mentally and physically to get over.

      Julie

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    • Posted

      Good luck.  Did you know about the facebook pages for support?  I know of one in the UK and an Australian one for hyperparathyroid.
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    • Posted

      Hi Anna,

      This is my first time finding a support group. I am not very good with computer stuff and have not been able yet to find a current group here in the US. Still looking.

      Thank you so much for your interest and good luck with your future.

      I could use advice of where to go from here with heal spurs and osteoporosis problems, any advice is welcome

      Julie

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    • Posted

      People from anywhere are welcome to join the hyperparathyroid fb groups as long as they have or have had an adenoma.  Lots of good advice there as well as on here.  Just type hyperparathyroid in the search bar on fb. 

      Good luck.

      Oh..I had heel spurs, they were awful, but eventually the points must have broken off because I no longer have any pain with them.  They did try cortisone..but it doesn't work for me.

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