1. Community
  2. Diabetes and hormone problems
  3. Thyroid and Parathyroid Disorders

Parathyroid tests I don't understand ?

Posted , 2 users are following.

norma72045
norma72045

Hi all, I'm new to this forum so be patient with me.  3wks ago I went to see my Endocologist ,I have an Underactive Thyroid caused by Amidrone given to me after a Heart Attack.  Anyway he said I may have a slight swelling of my parathyroid ,pointing to me where it was. This is all new to me. But his words were " it's not a problem we'll just keep an eye on it" Fine.   Then 2wks later I get a letter to go for an ultra sound scan Fine. Then 2dys later a letter to go for a NB Parathyroid Subtraction Scan. So I go from " nothing to worry about " to two scans he never mentioned.  Now I am worried the reason being I really don't understand it. Also I brought up a site that says these scans can't tell if you've got an adema because it's behind the thyroid.               Now my problem being I have several health problems, and a lot of medication, also I've had a lot of tests and mistakes made on me from no falt of my own.  So I'm worried about this radioactive test with all my health issues.  Can anyone give me any more information or help.  If you've read this post all the way through and can understand it.  THANK. YOU 

0 likes, 3 replies

3 Replies

  • fern12
    fern12 norma72045

    Posted

    I don't know anything more about Amiodarone Induced Hypothyroidism other than what I have read, but I doubt you will find many others of us with that type of experience, either.  AIH patients such as yourself are expected to be in less than 22% of those treated with Amiodarone.  For AIT patients, those who got an Overactive Thyroid, it is less than 9.6% of those on Amiodarone.  AIH is more common in Females, and AIT is more common in Males.  It is not common to have either AIH or AIT after Amiodarone use, but more so in those who already had an underlying thyroid problem. [From what I read.]

    It seems like having parathyroid involvement is even more rare, so for you, it sounds like you have a very unusual case.

    One endocrinologist did ultrasound on my thyroid once, and said he could see the parathyroids and they all looked fine.  I don't know why they would need to do a test with contrast (radioactive iodine.)

    If anything with the way you are treated still seems to be amiss, you could go elsewhere for a second opinion.

    I hope things go better for you, in any case.

    • norma72045
      norma72045 fern12

      Posted

      Hi Fern12, Thank you for your reply, it's interesting how you said you thought I may have had an Underactive Thyroid before the Amidrone .           For about 2-3yrs before I had the heart attack I used to have blood tests every 3 mths for a tablet I take for Rheumatoid Athritis well really just to check on kidneys liver.  Then I developed IBS, so my GP of the time said whenever I have a blood test for that to have one for the thyroid,which always came back negative.  So next Heart Attack and Amidrone, I was then taken off the Amidrone,I was then told I had Underactive thyroid from the Amidrone.    So I accepted it.  Then I went on a site for IBS where a lady picked me up, and told me in the UK they only do a TSH test and if that comes back normal that's it.  But she told me all the blood tests I should be having.which I had and that's where this Parathyroid has come from.  So like you say I'm wondering if I had an Underactive Thyroid years ago that wasn't detected. And that's all due to some stranger like yourself explaining more to me than I new.  This is the reason I worry because I Beleive in hindsight that I had an undetected thyroid years ago, but due to this country not doing all the tests I've now got a bigger problem.  Sorry to rant on so but its just one of a long list of errors.  Thanks for your patients.
    • fern12
      fern12 norma72045

      Posted

      I know what you mean.  Here in the US it is also just the TSH they test if it has never been found to be out of range.

      If you can go to a Naturopath you could possibly get more help.

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.