Posted , 3 users are following.
Hi is there anybody as weird and uniqe as me out there?
In July, I had a parathyroidectomy, I had a two inch cut for them to look at all four parathyroids in my neck,( as my scans were not straight forward in showing where they were) they removed one slightly enlarged one. Then to be thorough they removed the left Thymous, found no parathyroids in here.
After op PTH went up to 25 ( I have been told 7-7.5 is normal), then one month, after op my PTH went down to 8.9 and calcium down to 2.60 ( i was told this is top of normal) Yeah thought I was cured then two weeks ago they re-tested PTH levels and Calcium, PTH had shot up to 18.9 and calcium up to 2.75
Saw consultant on Monday really nice, skilled, clever man, he explained in rare unique cases some people can have 5 Parathyroid glands and they think I have a 5th and it is faulty hence the high PTH and Calcium readings still!!
One problem is to locate it!
He mentioned that the next stage would be to try and locate it by taking different blood readings from specific areas in my body using catherters to try and pinpoint where the high PTH readings are coming from e.g one in the groin,2 in the chest and 2 in the neck areas, I think this is what he said.
Then once located they would know where it is ,then have another op to remove it.
Is there anybody out ther like me with this problem, or had this problem and the above procedure has worked for them?
Not sure why my healing path has to be so weird
1 like, 11 replies