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Parathyroidectomy

Posted , 4 users are following.

johnny72489
johnny72489

3 1/2 weeks post surgery i had 3.5 of my parathyroids removed. I am having tingling and numbness in hands feet always numb. Taking 6 pills a day of 500mg calcium with 200units of vitamin d. Prior to surgery i was hyper calcimic. Will i ever get comletely well and get of the pills? I have developed anxiety from worrying. Can anyone give me advice? It seems like every otber day i feel better then the next day the tremors, numbness and tingling starts.

0 likes, 7 replies

7 Replies

  • liz44044
    liz44044 johnny72489

    Posted

    Sorry to hear your not better, may i ask where u had the  surgery done?  and when u say tremors did u have them before surgery ?  or is this something that just developed after surgery....same goes for numbness and tingling.......i am thinking about going to the hospital in tampa who specializes in this      get well and god bless  liz
    • johnny72489
      johnny72489 liz44044

      Posted

      I had it in West Bloomfield Michigan at Henry Ford hospital. The tremours resulted after the surgery. Same for the numbness and tingling. The only thing that helps is the medication calcium supplements. Have you had parathyroid surgery? I was told it could taKe a while for my body to adjust to the reduction in calcium and the partial parathyroid to start working. If i were you I would definitely see if the surgeon could determine how many of the parathyroid glands are bad prior to surgery. I was tired of being tired and depressed! Tampa advertises alot on the web and performs many parathyroid surgeries! I am very anxious and thought things would change immediately.I wish you luck! I was hoping someone else had the same symptoms as me and could shed some light on recovery timem

  • tana_33
    tana_33 johnny72489

    Posted

    Hi sorry to hear that you are not better. They often say it takes one month to go out of the hypocalcemia which follows the operation, and hypocalcemia gives tinglings bone pains anxiety difficulties to swallow ... but it depens if you were very high in hypercalcemia before, it can take more time. Why do they operated 3 and half parathyroids ? not a lot left ?
    • johnny72489
      johnny72489 tana_33

      Posted

      Thanks for your insight! I was told all the parathyroid glands were bad. He left a small amount of one hoping it would starting functioning properly. I was hypercalcemic for about 2years that i know of. My calcium was an average 11.4. The only symptoms were depression, no motivation and tired all the time. A friend had this same surgery and surgeon and it turned out great for her. I guess i neex to be patient. Did you have parathyroid surgery?
  • liz44044
    liz44044 johnny72489

    Posted

    No I have not I am recovering  since March 7 from H Hernia surgery and Nissen Fundoplication surgery...where they take your stomach and wrap it around your esophogaes ...having had problems aftsurgery of heart fluttering tests were done.  My calcium level is  11 then went to endocrinologist who is saying people live with that at 11 and will see me in 3 yrs.  aug i will have another blood work done and she did ultrasound and growth is in the thyroid gland which she said was not cancerous...i have been reading about the thyroid center in Tampa Fla.  according to them 11 is something to worry  about.   I too get weepy but am thinking its from the surgery and i am still recovering they say it will take about a year....but this i dont feel i am going to delay   i am gathering records now in fact and will seek another opinion here in Massacusetts...so that is where i am...i wish you well and be patient i am sure it will work out....and this forum is a good thing it brings light to know others are having similar things going on, that way we can be more aware...take care  liz
  • linda24932
    linda24932 johnny72489

    Posted

    hi Johnny 72489

    I had a partial thyrodectomy done in 1976. Things changed in 1991 when my thyroid gland became underactive for which I take thyroxine. I have now lived with hyperparathyroidism for over 12 years and the last six have been hell. The surgeons here say they cant remove the damaged parathyroid glands due to the extent of scar tissue from the 1976 op. I get severe pain in my leg bones, tingling and swelling in my feet, and am always so tired that I drop off at very inconvenient times. Not for long though as I am woken by severe pain. My calcium is usually 2.95 . That is the reading in the hospital in England. But it has gone much higher. I would give anything to have them removed and an end to this half life. I do hope you get back to full fitness soon. We forget what it is like don't we? Regards from Poppy.

  • tana_33
    tana_33 johnny72489

    Posted

    Hi I had a parathyroid adenoma of 4 cm and calcium at 14.6 and PTH at 972  I had nearly no symptoma they said I should have been in coma. I have been operated in March 2015 and since I take calcium (3g per day for one year and now 2 g I try to decrease to 1g) I am well if I don't forget the calcium otherwise I begin tinglings bone pains anxiety .... but they have taken off one or max two parathyroids. I think it can be long too with 3 and half. Be patient if you manage the calcium well you can do sports. I am not sure I am a good example.

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