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Parent of SVT kiddo

Posted , 5 users are following.

kelli2014
kelli2014

I have posted once before...

I am the parent of a 2 year old SVT patient. This is something that actually started at 32 weeks gestation. She was delivered via c-section at 34 weeks because doctors could not get her heart to convert in utero. We were averaging an ER trip about every 3 months - adenosine to convert, cardio converted 3 times. I think we have finally found a drug combo that works for her. She went 6 months without an event!! I think we didn't increase her dosage soon enough, which caused her last break through. She is on weighted increases, gain x lbs increase meds.

Now that she is getting older we might be able to try some converting measures at home before heading to the ER. So, I would like to know what are some ways you are able to convert yourself. Ice does not work, and personally I think that way is awful! We are not quite ready for blowing through a straw or bearing down. But, I would like to k ow other options worth trying.

I would also like to know how some of these medications make you feel. She's 2 - not quite able to tell me how her meds make her feel. We see our cardiologist every 3 months. She takes atenolol and flecainide every day. She will most likely have an ablation when she reaches 9 or 10, so beta blockers are our reality for awhile.

Thanks!!

0 likes, 4 replies

4 Replies

  • Lolasmom
    Lolasmom kelli2014

    Posted

    One thing that helps me is to lay on my right side and bring my legs right up so that my knees are up to my chest, Kinda in the fetal position, Try to breathe calmly

    How sad for your sweet little girl

  • paullie
    paullie kelli2014

    Posted

    My med can make me feel tired...so it's been lowered. That's great news that your daughter went 6 months wo having an episode.

  • dawn38901
    dawn38901 kelli2014

    Posted

    kelli

    if you go on facebook there is a group on there for svt for children, they are probably the best ones to ask, if you have trouble finding it go on the svt group and they should be able to  direct you.  

  • shay75
    shay75 kelli2014

    Posted

    I agree with Lolasmom.

    Lying down and trying to mimic falling asleep is what always works for me.

    Letting your arms and legs feel all loose and not panicing (easier said than done especially with a little one). 

    Trying to get into that meditative zone can help, but everyone is different.

     

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