Parotid benign tumor surgeon in Massachusetts

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Hi,  I see a lot of discussion here and people have gone through challenging situations, hence I thought I can ask for some recommendation here.

I am diagnosed with pleomorphic adenoma (benign tumor)  which is sufficiently big, though not obviously visible (right side).  However, it is complicated as the tumor is also in the so called "deep lobe" where the surgeon has to deal with the facial nerve.  My surgeon says that though will be careful and use the latest techniques, he doesn't know what the outcome will be when it comes to facial nerve.  I am worried.

The surgeon who I am working with also doesn't seem to have good reviews.  

Can anyone therefore, suggest a good surgeon in Boston area for the same?  I highly appreciate your help in this regard.

Dennis

Lexington, MA

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7 Replies

  • Posted

    Hi Dennis,

    I live in West Medford (mass.) , very close to Lex. Feel free to send emaul to wendbar aaaaaatttt. A-o-Lll.

    I'm having surgery July 5th with dr.Leahy at mgh...mine is sublingual, so different.

    What specifically do you mean about not good reviews. ..

    Wendy

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    • Posted

      Thanks Wendy, for the quick response.  Hope yours is benign too.  All the best for your surgery.  Our tumors are very different.  

      After all the diagnosis is done, before setting up a date for the surgery, i was doing some reading and I found some very unsatisfied people with my surgeon who also does other work related to head and neck.  Hence I am doing more reading and asking around to see if people were in the same situation as me and issues were taken care of.  

      Best,

      Dennis

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    • Posted

      Mine is presenting as benign, but it could be pre-cancerous and so they want to remove it. It's rare, data is pretty slim.

      Getting actual data is hard on any surgery. Do you know how many surgeries he/she has done for your kind of turmor?  

      It has been driving me crazy that I can't get more real info/stats.

      -Wendy

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  • Posted

    I can't help on this but I've had the same surgery in the UK and my surgeon was responsible for developing some of the modern techniques. In the past they had to break the jaw to get to the deep love but my surgeon made the cut along the line usually used for face lifts then followed a natural line on the front of my neck and it was very successful with the help of facial physiotherapist for a while. So I would check out how they hope to get to the adenoma and whether physio is available after. Good luck.

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    • Posted

      Thanks Eva.  Yeah, there are better techniques these days. However, the surgeon's skills do matter quite a bit when it comes to surgeries.  And doctors don't perform these surgeries too often, hence they are learning every time.  

      I am planning to talk to a few doctors first.

       

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    • Posted

      I have just had similar surgery for ascinic cell carcinoma, the facial nerve is still bruised but eye is nearly closing , mouth still weak  on 1 side , but getting better daily, now having radiotherapy, did u have radiotherapy?? I am suffering 2 and half weeks in with severe burning to neck and throat , what did u use??? 
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    • Posted

      Mine was benign so I didn't need radiotherapy. The facial palsy improved dramatically and initially I could only drink with a straw. Within a few months my face was back to normal. I hope your pain clears up.

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