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I had a partial (subtotal) hysterectomy due to adenomyosis one month ago and I have been recovering pretty well so far!. I kept my ovaries and cervix.
I had painful and heavy periods, uterus enlarged nearly 50% and was diagnosed with adenomyosis. In fact, some doctors said it is an intramural fibroid, but as I’ve learned during this journey, these two are so [similar that one may be misdiagnosed for the other. Because adenomyosis causes the uterine lining to break into the uterine wall and to grow fibroid-like masses there. Final diagnosis confirmed adenomyosis.
I am not from UK but this website and women’s experiences here was sooo helpful for me on my journey to decide and prepare for my hysterectomy and afterwards that I wanted to share some info and experience… just in case if it helps anybody
My doctor suggested different options for treatment: Mirena (IUD), uterine embolization and hysterectomy as the long-term options and GnRH hormone treatment as a short term solution. But he also made it clear that these options will help only for bleeding, not for the pain.
That info was crucial for my decision to opt for a hysterectomy because I have been using NSAIDs for pain for years and I was fed up. I have been feeling the side effects more and more. For the bleeding, I have done quite a bit of research, and from the websites like this one, learned that Mirena and uterine embolization were not helpful for many women and meant just more suffering for longer time. I also used Fibristal (called Esmya in UK) for 3 months before my surgery, was excited about it; but it did not help much: it made a difference of only 1-1,5cm smaller if ever…
So I opted for a hysterectomy! And, so far, I am really happy for doing it. It feels like a new phase in my life is starting: I don’t have to deal with all that stuff anymore: heavy and painful periods, pain in b/w periods, chronic anemia, fatigue/exhausted, side effects of Naproxen (NSAIDs for pain)… They will all be history I am hoping a better quality of life.
However, it is important for me to emphasize that I am not trying to promote hysterectomy in any way. I know it is a personal and important decision and it is a major surgery. The decision depends on one’s expectations from life and priorities.
good luck to everybody!
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