Passed out, then Dizzy, without letting up for 8 days so far.

Posted , 5 users are following.

Hi. 8 days ago, without any warning signs, symptoms of any kind, actually a great day, in the middle of feeling great, I was standing talking to family for a few minutes, when if felt like mid conversation, an anesthesiologist put the gas on, and I felt my "Lights going out", only paralleled with "Going under" for surgery. 

I was not a little dizzy leading up to, I was in mid sentence, and only had about 3 seconds to say "Call 911" before I started to collapse, and was caught by a family member, placed into a chair, and although I'm not sure if I went "Completely out" I was very disoriented as they were walking me to the car, to take me to the ER. 

From that moment, 8 days ago. if "Complete Lights out / Passing out" is "A 10", I haven't really fallen below a "3 or a 4" I am consistently a little flush / hot / pulse in my face, and my dizziness occasionally through out the day, escalates up to about a 6, and then of course I make it worse with my panic / fear that "It's happening again" but it doesn't.

In the ER, they ram a CatScan, EKG, Echo, Brain MRI, Blood pressure checks out, full blood panel checks out, potassium, blood sugar, hear rate, all ideal. 

I'm Male, 45 years old, 5'7" 180lbs, don't smoke, drink, and was having a great weekend. 

Both my ER doctor, and Gen doctor gave me thourough ear exams, and the "Follow Finger" vertigo test, and ruled out Ear infection, and vertigo.  

They released me with a meclizine prescription, and cleared all of the "Life Threatening" possibilities of Cardiac, or Stroke issues, but for 8 days this isn't subsiding even a little, something feels "Broken" ever since the "Incident" and I'm starting to wonder if this "Falling Sideways / Face Flush / Dizzy / anxiety (Caused by fear of another episode)" is just how I'm statically going to feel, forever, left undiagnosed. 

I've never felt anything like that (Or this) in my life... Every other illness or injury I've ever had, has modified, or lessened over 8 days, this feels Static / permanent, but occasionally escalating,  in fact today, I've probably been at a 5 All day. 

My General dr. is stumped, made me wear a pack that monitored my heart, like an EKG for 24 hours with no results, and went in for a full echo / ultrasound with no results. I definitely feel completely "Out of whack" like somethings broken. 

Oddly, I have NO other symptoms. no nausea, diarrhea, chest pains, arm or leg pains, sweats, absolutely no other symptoms but my psychosomatic anxiety / raised heart rate when I scared / panicking about being at a 6 or 7 (Which certainly doesn't help) 

I've always had light Tinitus, which is still present now, and may also be more psychosomatic as I try to self diagnose over the internet, reading about Viral Labrynthitus, Vertigo, and inner Ear infections. (Which I have NO other symptoms for... no ear pain, hearing anomalies, fluid / closing of the ear etc...) 

I'm more exhausted from fear that I had a Stroke or something... as I was "Going Down" because the involuntary loss of consciousness was so foreign to me, I was really thinking "Is this it?" 

I am completely open to the “Stress / Anxiety Disorder idea”, in fact, that’s the “Best case scenario” in my mind, I’m afraid though that I am a really low Stress guy, with a Job I love, incredible friendships and family connections, with no money problems, or heartbreaks. 

I’m open to talk to a Psychiatrist, which I will book Monday, to also rule out, how ever, I feel like I’ll bore the life out of them, with a content life, solid loved and supported peer group and family, financial, professional, and romantic success, I genuinely wake up, every day, unbelievably excited, and passionate about jumping into every day I get to participate in. 

The only Stress / Anxiety i feel i’ve experienced in the last 5 years or so, is  “This Event” where I collapsed, then some following anxiety feeling like something is very “Off” in my body / head (Physical head) since the moment of "the incident".

Again, I’m not remotely against / ashamed / or embarrassed about the possibility of mental illness / anxiety, I know these things can manifest themselves into physical events. I’ve been clean and sober 20 years and am VERY versed, and open to the strength of being completely open to the vulnerability of mental illness, and the pursuit of mental healing through council, and reflection. 

But, unfortunately, in this category as well, I have NO other symptoms…. I sleep like a baby every night, never over react, and am genuinely the most calm / empowering one of the bunch, when faced with stressful situations..   

IF this is, or isn’t stress… I’d still love to know the physical manifestation of what “Popped” instantly, in my body, dropping me to the ground, and has me so off balance ever since, I have trouble keeping my balance. 

Now I'm wandering around putting name tags on all my stuff at work incase something else happens, but everyone, from the ER doctor, to my General doctor  are kind of throwing their hands up, disqualifying ANY diagnosis, because I have NO other symptoms. 

But something is VERY off. 

2 likes, 7 replies

7 Replies

  • Posted

    Wow. That's quite a stumper. It sounds neurological but you seem to have had quite the number of tests  to rule that out. Don't give up at the first "oh, you're fine" if you clearly know you are not. My husband went with an undiagnosed broken neck for 4 years while doctors insisted it was anxiety and depression. He knew the instant it happened but couldn't get doctors to listen. He pushed and pushed and finally connected with the right neuro surgeon who discovered the break. Have you actually been through a balance clinic yet, one that not only tests your balance but provides the physical therapy? After my ENT dismissed my dizziness as not being vestibular when I KNEW that it was, my now physical therapist ran more extensive tests and could tell by my eyes that it was indeed vestibular. Since I started my exercises, my recovery has been significant. Good luck and know that we are here to bounce ideas off and just for mental/emotional support. I wouldn't have made it without these folks, 
  • Posted

    Sounds very familiar.  Continue to rule out other things but Labs/VN sounds like the culprit.  Like Mary's reply, find a specialist that deals in dizziness as a specialty which can be a physcial therapy practice or a chiropractic practice that specializes in these types of disorders.  An ENT Dr should be able to confirm the Labs/VN with testing but that is just a formality if all else is negative.  Lot's of vestibular rehabilitation needed to recover.
  • Posted

    Hey Super

    You sound like a great guy. I think you are experiencing some kind of inner ear/vestibular issue. Feeling wonky as i call it makes us all anxious. Go see an inner ear specialist...not just an ENT cuz they know squat diddly. I'm assuming you are in the States so you have access to the best.

    Good luck! I really hope you get an accurate diagnosis. They are hard to come by with inner ear issues.

    Debbie

  • Posted

    Yes, something definitely other than "mental" is going on. You need to have vestibular tests to rule out invisible problems. If you are lucky enough to find a good ENT/ear specialist, they will do BPPV tests, ENG (nystagmus) tests which involve blowing cool, then warm air into your ear (which should make you a little dizzy). If it doesn't, it tells them that you brain-eye-ear connection is off somewhere, and hopefully they will refer you to a neurologist (otoneurologist if anywhere in your area). Good luck. I hope you find an answer. I wish I was eager to jump out of bed everyday with the enthusiasm that you have. My off-balanceness has taken that away for now. Hopefully, I will find an answer.
  • Posted

    Thanks for all the replies everyone, I had a week or two of "Manageble diziness" following this post, so, I figured it was dissapating, then... about 20 days after the "1s incident" I had another extreme dizzy spell, this time, not foriegn to me, as I've been dizzy for 20 days, made me realize that the shock / scare of the 1st incident, wasn't fainting, it was the initial "10" dizzy I'd never experienced. 

    Weather it was the chrystals in my inner ear falling, or my tubes getting blocked in that moment... I'm pretty convinced that it's something in my inner ear. 

    I'm now (An have been, the last 5 or 6 days), back to an EXTREME Dizziness of around a 7 or 8 all day... it seldom drops to a 6, I've finished the 6 day steroid pack my ENT had me take, and it certainly didn't make anything better, it's escelated to imparement. The ENT thinks it's Meniere's Disease, which is a pretty sh*tty prognosis, to just smack me, out of the clear blue sky, with NO lead up. 

    I've got the balance & air tests next week, but I jumped ahead of that, and booked myself with a neurologist, I'm curious to try Antibiotics (Be it aural, or Ear Drops) and a betahistine. 

    So dizzy, all day, can't drive, hard to focus, work, be creative, I'll be trying everything, and I sure hope something works... I'll be sure to let you all know if it does ! and I appreciate the responses. I wish everyone well !

    • Posted

      Do you have any hearing problems? That, along with dizziness is associated with Meniere's. Mostl likely they will put you on a diuretic if that's what your condition is. 

       

    • Posted

      I think i've always had (Last 10 years) Tinitus, which I imagine I'm WAY more "Tuned into" / Focusing on, pshchosematically as I'm anxious about my condition / dizziness

      Strange thing is, no hearking loss, ear pain or closure, just light tinitus, and EXTREME diziness / light headedness. 

      I'm also aware (Possibly again psychosematic) od a bit of ear "Pressure" but I'm not sure. 

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