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Pauline50905

Posted , 6 users are following.

pauline50905
pauline50905

Today I feel the fbs is returned with a vengeance.

I found this group and realise the burning, itching is common with fbs.

Just waiting an app. In London hosp.

To get assessed and advice.

I won't be going on any drugs, that's for sure. After reading what some of you sufferers say, drugs just cause more probe. The natural way us best. It took me 1yr. To get off amitryptaline and I did it myself. I still have side effects. Pregabalin seems to be ok but not on high dose at moment.

It's good to share and think about all other sufferers who understand

I went through cancer whilst having this and I lost my benefit due to a biased Dr. It was hell.

2 likes, 6 replies

6 Replies

  • hope4cure
    hope4cure pauline50905

    Posted

    You have a good understanding of FM very thankful for your post. Admire your additive. Sometimes the medications can cause itching. Also try Hydroxyzine helps with itching. 

     

  • UKSteve
    UKSteve pauline50905

    Posted

    Not so easy to be that brave when you get to the far end of the scale of fibromyalgia pain where topping yourself starts to look like an option. Believe me you'll be grasping at any drug that gives you the slightest relief if you get to that stage.

    Im currently in a flare that feels like ive been in a road accident and im left in the burning vehicle and the meds ive already taken arent touching the pain.

  • christine26761
    christine26761 pauline50905

    Posted

    The flare ups are horrid..but I only get them now, also with my Fibromyalgia, it’s much better that having those horrid symptoms every single day for years. They seems to go into a sort of remission, then  comes back with a vengeance, feeling for you Pauline.gentle hugs from over the seas..be bkessed🙏have lovely day..hope it all gets sorted for you quickly

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