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Pbc

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ann_63961
ann_63961

Hi.. I'm new to this. Has anyone with pbc have autoimmune disease? And which ones?? I always have skin breakouts. Not acne. More like my skin is flared up. Around my mouth and nose ;( I have pbc.. And bowel disease...

Thank you x

0 likes, 3 replies

3 Replies

  • AlexandriaGizmo
    AlexandriaGizmo ann_63961

    Posted

    I to have bowel disease uc which do you have, also ra
    • ann_63961
      ann_63961 AlexandriaGizmo

      Posted

      I'm celiac and I have primary biliary cirrhosis of the liver, I have skin issues.. I was tested for lupus.. Normal range is 0/12 and I'm 12! Borderline,, when last year it was 2! I'm ill as a dog and fatigue from another planet,
  • Markonious
    Markonious ann_63961

    Posted

    I have a sister, AI disease to PBC called PSC, primary sclerosing cholangitis. In both, we deal with a number of extrshepatic conditions. A major one for both of us is called hepatic osteodystophy, metabolic bone disease leading to ostepenia, osteoporosis and avasculat necrosis.

    You should have your doctor order a BMD (bone mineral density) test every few years to monitor things. Also, check your vitamin-D levels, which will likely be low due to malabsorption, and add supplements as needed.

    I am relatively young, male and active (was anyway), and I am dealing with osteoporosis with avascular nercosis. My bones ache 24/7, not much fun. That’s why you need to work with your doctor to get ahead of this issue.

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