PBC new diagnosis - not sure I want to live thru it

Hi I'm really sorry to hear your diagnosis, you say is it worth living with this disease, I don't know, before your tests etc were you happy?? Also you say you don't drink much, well then you want miss it as much as someone who was a heavy drinker, you say also that your life span is maybe seven years, where has that come from, you have been caught early so there are many things you can do to help yourself, are you over weight, do you have raised cholesterol and are you generally active?? I know at this moment your feeling very down and nothing I can say will help that but I'm sure just reaching out and talking to people who have survived this and are still living just to prove the diagnosis wrong.

Even worse case scenario seven years is time for them to come up with better treatment, 10 years ago the treatment was not great, now its so much better, do you have any contributing factors

Sorry to hear your ne it isn't  ws and im also sorry to hear you are so depressed, who gave you the prognosis and who did the blood tests, I know of a few people who also have pbc and many of them have had it for many years and take medication which seems to keep it at bay I myself am being tested for it, autoimmune diseases such as sjogrens can cause pbc I have sjogrens and don't drink alcohol at all and never have so it isn't always associated with drinking although I must just add that drinking isn't going to help and I personally would be as kind to my liver as possible. Hopefully when you see your gp you will be given more information I am seeing a gastro specialist.

Can I suggest you get in touch with the Pbc foundation. There are members in their 90s so it does not necessarily shorten your life. None of the information I have read suggests you would only have 7 years to live so long as you take the right medication and are under the care of a competent liver specialist.

I have to say I am horrified that you were given this info by email - something life changing like this needs to be told ideally face to face, or at the very least by phone so that you can ask questions.