Posted , 4 users are following.
I was diagnosed with a 4 cm staghorn kidney stone after having a CT scan for adominal pain and referred to the urologist. The doctor explained that PCNL was the only option to remove the stone before it damaged the rest of my left kidney. I scheduled the surgery for Nov 11th and everything went well the day of surgery. The tube was inserted 2 hours prior to my surgery by Intervening Radiology and I only felt mild discomfort. Surgery went well and all but sand size granules of the stone were removed. The pain meds worked fine until the middle of the night. The pain became excruciating and the nightime nurse was ot very responsive. I had to wait anywhere from 2 hours to 5 hours for the nurse to give me the pain pills. I opted to be discharged the day after to surgery due to such poor care at the hospital. My first few nights home were extremely uncomfortable and the pain was horrible when I would lay down or recline. I requested additional pain meds and to take them every 6 hours versus 8 hours and this seemed to get the pain under control. I was starting to feel better when the day came to get the nephrostomy tube removed. One week after surgery, I went back to the hospital and within 15 minutes the nephrostogram and tube removal was complete. It was a little uncomfortable, but not painful. They bandaged me up and gave me a care package with a handful of gauze pads and tegaderm film. I'm not sure what they thought this would accomplish. I used up the whole care package within a few hours and ended up with what felt like diaper rash on my back. The urine leakage was uncontrollable from my back. I soaked at least three loads of laundry before my husband was able to get home with bladder control pads and ACE bandages to improvise a urine control bandage for my back. Here I am 39 hours post tube removal and still changing pads on my back every 2-3 hours. Doc says this is normal, but it doesn't feel normal to function with a pad on your back! I'm thankful my job gave me advanced sick leave and I can stay home until this dries up. I'm also still feeling the same amount of pain I have been for the past week. I'm glad many others haven't had as rough a time with PCNL, but I wish I had been more prepared for the difficulties I've endured with the post surgery recovery.
0 likes, 5 replies