1. Community
  2. Women's health
  3. Polycystic Ovary Syndrome

PCOS diagnosis... unsure of diagnosis...

Posted , 3 users are following.

nicole09864
nicole09864

So since August 2016 I haven’t menstruated, I also experience agonising pain every single day. Despite 5 DR appointments, it took until the 6th for someone to stop telling me it’s because I’m stressing too much... 

The first doctor said don’t worry about it, if I want children go and see him! 

I went for a vaginal ultrasound and it was confirmed I have multiple cysts so I was diagnosed with PCOS. My DR said that the only reason he diagnosed me is because of the absent periods and scan results. But he isn’t 100% it is PCOS as usually people with it have 3 symptoms and I have non other than the above. 

I have my first gyne appointment on the 17th October. 

The only reason they are referring me is due to the pain I experience still. Sometimes I am known to be up all night and cry. 

I have been put on the combined contraceptive pill to help trigger periods, I have been on this one before and I don’t have periods on this as it is a rollover pill. I told my DR shouldn’t I have one that allows me to ovulate and he said no, I feel like my appointment in 2 weeks will be meaningless as the whole aim of this is to help me ovulate. Not avoid it. 

Since I have been on the pill my pains are worse and are also shooting now...

I don’t know what to do! 

0 likes, 5 replies

5 Replies

  • tammy17515
    tammy17515 nicole09864

    Posted

    I completely understand and can relate. Sometimes the pain can be so unbearable. I often feel like something is coming out of me cause of the heaviness. Keep expressing to your doctor how much it hurts and don't stop until you get an answer you're satisfied with. Only a person experiencing this type of pain knows what it feels like. Good luck to you.

  • nikkilane27
    nikkilane27 nicole09864

    Posted

    I got diagnosed with PCOS, and i was experiencing constant pain, which most doctors say shouldn't happen if you have PCOS, because pain isn't necessarily a symptom.  So a few months I saw a vascular specialist for my pains in my thigh, and he talked with me for a while, and is very certain I have Pelvic congestion syndrome (I haven't been diagnosed yet I'm waiting for my ultrasound). A lot of women with pcos have it, but it goes undiagnosed. It's basically varicose veins surrounding your uterus and ovaries. Pain gets worse through out the day, because as you are sitting and standing blood pools around in the veins in your pelvis. Some common symptoms are bloating, pressure in the pelvic area, a dragging feeling, pinching or shooting pain, a dull ache, pain after sex, pain during ovulation, and irregular periods, it can even cause cluster migraines. 

    I'm not sure if this is what you're going through, but I never would have thought it was possible to have varicose veins in your abdomen. Hope it helps! 

    • nicole09864
      nicole09864 nikkilane27

      Posted

      How interesting! They’re very similar to the symptoms I have so I may have to speak to my doctor about that! Thank you!

  • tammy17515
    tammy17515 nicole09864

    Posted

    That does sound very similar to what I have experienced. A lot of bloating for sure and lots of pain...almost all the time. What type of treatment do u get for this?
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.