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PCOS support after Diagnosis ?? please help

Posted , 5 users are following.

emma54327
emma54327

Hello All sorry I have never been on a forum before, don't really know how it works.

I was diagnosed with pcos about 12 months ago however it has come to light just recently that i may not have received the correct support to deal with this...I think I was just diagnosed and was told to watch my weight, has this happened to anyone before or is there more to it?

I struggle with my weight anyway always have, but the lack of self esteem and the body hatred I feel towards myself is sometimes unbearable, I can't face my partner touching me at all because I feel so disgusted and damaged it is causing problems, and then there's the part about children, do I want them later? can I have them? Will they be healthy if I did...do others feel this way too? Was there something else I was supposed to do at the time of diagnosis?

Any help anyone could provide would me much appreciated, thanks Emma x

1 like, 6 replies

6 Replies

  • Caterina2626
    Caterina2626 emma54327

    Posted

    Hi Emma, 

    I have had the same problem as you it seems when it comes to support. When I was diagnosed the doctors kind of said that I had it and that it could possibly cause difficulty with getting pregnant in the future and that was pretty much where they left it. That was around 5 years ago now. 

    I recently went to the doctors with a list of health problems building up most of which I though were non related but as it happens, nearly all issues were indeed related to my PCOS. 

    I too have always struggled with my weight and I didn't find out until my visit to the doctor that I am insulin resistant which is a common sise effect of PCOS. 

    I suggest you research as much as you can about the issues that come with the condition and speak to your doctor about any problems you think you need support with. 

    I myself am having to stick to a Low GI diet (Glycemic Index) inhope of shifting some of the excess weight that I have managed to put on so quickly. There is also talk of putting me on metphormin to help. 

    I can't really explain it all as well as a proffessional so again I suggest researching it to get a better picture of how things work and why things are the way they are. 

    I can also very much relate to the self esteem issues. It is extremely challenging but with the right support and good friends around you I believe you can do anything. I am only just really startign my own journey so maybe we can do it together with the support of our fellow PCOS sufferers. 

    I wish you all the best in the future hun.

     

    • emma54327
      emma54327 Caterina2626

      Posted

      Thank you very much for coming back to me Caterina.

      Some pennies have been dropping now i have joined a couple of groups, the black hole i have been living in is a bit bigger now as now i know im not on my own, which is a big big comfort.

      I can try and explain to my family and friends and partner a little more now and do feel quite angry about the way i was just left to deal with it, it shouldnt have happened that way.

      i am currently on a weight management plan complete with CBT Training and other support clinics to help get my weight down and reduce all this anxiety i have surrounding me...

      i just want to be balanced again, feel stable, when a complete stranger tells you they can feel anxiety radiating off me was such a shock to the system, i must be affecting so many people close to me, hence the struggles with my partner...no one as mentioned any medication to me yet but there seems to be so much i dont know.

      Thank you for putting me onto a direction, i will do more research (i did look up at the time the acne the weight the hair growth) and try to establish something for myself...

      i wish you the best of luck too hun, hopefully one day we will help eachother through all of this xxx

    • Caterina2626
      Caterina2626 emma54327

      Posted

      You are very welcome Emma. 

      Knowing you are not alone in this will be a big weight off your shoulders. It certainly is for me.

      Good luck with everything.

      xxx 

  • natasha34584
    natasha34584 emma54327

    Posted

    Hello Emma, ☺ I can tell you there are many Women fighting PCOS. You just have to keep a positive mindset. Weightloss does help alot if you suffer from PCOs, when i was Diagnosed after I left the doctors the first thing i did was cry then i stopped, told myself crying being mad isnt going to help get better. I been fighting it very aggressive, Any and everything is possible. You have to eat healthy, exercise atleast 30 mins a day on the weekends just relax but on the weekdays i would workout. Stay Strong, Mind Over Matter, Lets Get it!
    • emma54327
      emma54327 natasha34584

      Posted

      Hi Natasha,

      Thank you, i know myself now there are many of us struggling with this and now i dont feel as alone in the fight as i did.

      Im following the NHS live well/eat well guide, im under their management programme and get weighed once a week, there is the option for gastric surgery at the end but we shall see...not that i want to take the easy way out, i just want some sort of balance to come back, a balance in myself, to be able to enjoy life as i should, not forever in doubt and guilt and shame about myself! no very good at the positive part but i think following what i have done since october and gradually introduce some exercise and other bits should fall into place... xx

    • kat1989
      kat1989 emma54327

      Posted

      I have just been diagnosed and was told nothing tge doctor asked if i knew what polycystic ovaries was and i said no yet he didnt really give me much information im 27 and havent a clue how long ive had it for. I had a baby 15months ago she is my 2nd daughter so odviously i feel blessed but i still feel extremely upset and down that i may struggle in the future. My daughter said the scan suggested i have polycystic ovaries as i have lost of cysts in both ovaries how ever he said he wasnt convinced so basically left me not even knowing if i do have it and having no knowledge on the issue.
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