PCOS survey, please help me and other sufferers

Posted , 34 users are following.

I would like to continue my research into my main problem with PCOS. I would really appreciate your help if you could answer these questions because I will take them to the doctor as proof that we all live with this everyday of our lives with very little support for the medical profession.

1. Do you feel you have full support from your doctor?

2. What two things are the worst part of your PCOS?

3. Are you taking any medication including the pill?

4. Have your symptoms got worse as you've got older?

5. Do you suffer from panic attacks?

6. Do you suffer with stress/depression?

7. Have you noticed a pattern with questions 5 and 6 where it happens more at a certain part of your cycle? If so, which week/s does this tend to happen?

Please, please help me to help you by completing this survey and maybe together we can force our doctors to take us seriously.

Thanks

Clare

6 likes, 49 replies

49 Replies

Next
  • Posted

    1. No, was diagnosed and told to go on my way

    2. Weight issues and excessive hair

    3. Not at the minute for other reasons

    4. They have got worse since I started losing weight

    5. Yes

    6. Yes

    7. No pattern

    hope this helps xx

  • Posted

    Thank you for your quick reply, very interesting
  • Posted

    I don't know if it makes a difference to your research but have been to docs 3 times in the last week because I have all symptoms of early pregnancy but tests keep coming back as negative anf as yet don't have any answers for it so unsure if I am pregnant or if it is to do with the pcos or something else xx
  • Posted

    1. Yes I've finally found a doctor who is taking this seriously. .I'm 33!

    2. Slow metabolism and fertility issues

    3. Metformin and clomid

    4. My periods stopped after I came off the pill last year

    5. No. But I suffer from anxiety

    6. I can get stressed easily. No depression

    7. Week leading up to my period I would have pms symptoms even when on the pill

    Hope this helps

  • Posted

    Thank you for your reply
  • Posted

    1. Not at all from previous doctors, but finally from my new current female doctor, yes, I do.

    2. Feeling of going to pass out, sickness & infertility.

    3. B12 injections & iron tablets.

    4. Yes & fully blown & caused constant infections after laparoscopy.

    5. have been told symptoms are panic/anxiety attacks by previous doctors but current doctor says not anxiety/panic attacks but symptoms of pcos caused by hormones, which I agree.

    6. No stress, but moods are up & down.

    7.Yes. is worse during ovulation & week leading up to menstruation.

    thank you for doing this & if doctors don't take this seriously now then we have no hope at all!

  • Posted

    1. No, when diagnosed my doctor told me (exact words) 'you're best to look it up on the internet because it's not something we know much about'

    2. fertility & weight issues

    3. was on Dianette but came off in October to start TTC

    4. No, my cycles have gone from 2 a year to about 9/10

    5. haven't had one in about 9 years

    6. I had medication induced depression from the pill but that has stopped now.

    7. n/a

    x

     

  • Posted

    I should add to 4. that my hair is noticably thinner since being off the pill and I get spots more often... soooo attractive. 

    plus I hate that the only advice we get is loose weight or go on the pill..(which doesnt really help when you are ttc)

  • Posted

    Hi 

    1.yes, sent me for scan when trying to get pregnant after a year to determine if I had PCOS but general knowledge / advice not great .. 

    2. Slow metabolism so struggle to loose weight & annoying irregular periods

    3. No

    4. Yes I developed gestational diabetes & high blood pressure while pregnant as a result of having PCOS( there are huge links here that no one ever told me! ) I'm at greater risk of developing diabetes type 2 later in life because of the PCOS .

    5. I have always been anxious but recently have had panic attacks after having 3rd baby..

    6. Yes to both

    7. Yes in the days leading up to a period & feel adrenaline rushing through my body 

    Good Luck x

     

  • Posted

    1) No support from any GP over the years. Simply take combined pill. Started on Diannette at a very young age with no benefit to my excess hair or acne at all.  At 38 I still have same problems minus acne, possibly due to years being on combined pill.  Have suffered stress/depression for years and still no real interest.

    2) Weight and excess facial & body hair.

    3) Other than combined pill, Liraglutide daily injections for type 2 diabetes.

    4) The only symptom that hasn't worsened has been acne.  Everything else has remained, but I do feel my stress/depression has become worse when there is nothing in my life right now that should make me feel as I do.

    5) Not panic attacks as such, but definitely anxiety attacks.

    6) Have suffered stress/depression since my late teens.  ( I first developed hirsuitism at age 12).

    7) Only to a certain extent; in the 10 days before my period I become very anxious and agitated. But this relieves slightly when I start bleeding.  All other times I tend to have an underlying tension/agitation and continually feeling emotional and weepy.

    Hope this helps Clare :-)  I am about to stop taking the combined pill and attempt the copper coil again.....my partner and I aim to be contraceptive free next year and take each day as it comes. xx

  • Posted

    Only me again.

    I have also suffered from greater insomnia as i get older and have read various articles that would suggest this could also be due to PCOS and "insulin spiking".  I truly feel dreadful!! My work means I am incredibly tired afterwards yet I cannot sleep.  Falling asleep isn't an issue but I struggle to sleep longer than 5 hours per night.  After night shift I can only manage 3 max!!! Has insomnia affected any other women with PCOS? If so, whats the answer??

    Thanx xx

    • Posted

      Hi Barbara. I'm so sorry to hear how much you're struggling. It's sounds like I feel some days that you've just had enough. I often say to myself.....why me but by talking to other sufferers it helps to know that you're not alone. I wish there was one pill we could all take and no more problems. I've been given cerazette for my hormone levels and my anxiety has been better. Take care
  • Posted

    1. Do you feel you have full support from your doctor? - No and never have since having symptoms 13 years ago and only being diagnosed 4 years aog

    2. What two things are the worst part of your PCOS? - no regular periods (we are coming to that point in our relationship where we want children and not luck over the last year) and mood swings

    3. Are you taking any medication including the pill? - no, I was on the pill Febriary 2014 - April 2014 but came off it because was making my mood swings even more irratic

    4. Have your symptoms got worse as you've got older? yes

    5. Do you suffer from panic attacks? - anxiety attacks used to be a regularity, havent had one in nearly 5 months

    6. Do you suffer with stress/depression? yes

    7. Have you noticed a pattern with questions 5 and 6 where it happens more at a certain part of your cycle? If so, which week/s does this tend to happen? yes, the week before I am due on and during

    I hope this helps xx

     

    • Posted

      1. I hardley go see my Doctor but I did leave him a message about it since a friend of mine told me about PCOS

      2. I had gestational diabetes and now have type 2

      3. My metabolism is slow and I have excessive weight gain.

      4. It did not occure to me till now that I ve been losing my hair since I became pregnant and it has been 17 years.

  • Posted

    1. Yes, my doctor diagnosed me and explained a bit but thats all

    2. Weight issues and sleeplessness

    3. Yes, Glucophage, staminagro, antagolin, omega pills

    4. I was diagnosed 5 months ago, but as I read the symptoms I realized ive had it since I was young and it has been getting worse

    5. I used to

    6. Yes, severely

    7. I havent paid that much attention

     

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