PCOS survey, please help me and other sufferers
Posted , 34 users are following.
I would like to continue my research into my main problem with PCOS. I would really appreciate your help if you could answer these questions because I will take them to the doctor as proof that we all live with this everyday of our lives with very little support for the medical profession.
1. Do you feel you have full support from your doctor?
2. What two things are the worst part of your PCOS?
3. Are you taking any medication including the pill?
4. Have your symptoms got worse as you've got older?
5. Do you suffer from panic attacks?
6. Do you suffer with stress/depression?
7. Have you noticed a pattern with questions 5 and 6 where it happens more at a certain part of your cycle? If so, which week/s does this tend to happen?
Please, please help me to help you by completing this survey and maybe together we can force our doctors to take us seriously.
Thanks
Clare
6 likes, 49 replies
pixiedust1989
Posted
2. Weight issues and excessive hair
3. Not at the minute for other reasons
4. They have got worse since I started losing weight
5. Yes
6. Yes
7. No pattern
hope this helps xx
clare70514
Posted
pixiedust1989
Posted
Luna81
Posted
2. Slow metabolism and fertility issues
3. Metformin and clomid
4. My periods stopped after I came off the pill last year
5. No. But I suffer from anxiety
6. I can get stressed easily. No depression
7. Week leading up to my period I would have pms symptoms even when on the pill
Hope this helps
clare70514
Posted
capricorn2010
Posted
2. Feeling of going to pass out, sickness & infertility.
3. B12 injections & iron tablets.
4. Yes & fully blown & caused constant infections after laparoscopy.
5. have been told symptoms are panic/anxiety attacks by previous doctors but current doctor says not anxiety/panic attacks but symptoms of pcos caused by hormones, which I agree.
6. No stress, but moods are up & down.
7.Yes. is worse during ovulation & week leading up to menstruation.
thank you for doing this & if doctors don't take this seriously now then we have no hope at all!
jojo2105 clare70514
Posted
2. fertility & weight issues
3. was on Dianette but came off in October to start TTC
4. No, my cycles have gone from 2 a year to about 9/10
5. haven't had one in about 9 years
6. I had medication induced depression from the pill but that has stopped now.
7. n/a
x
jojo2105 clare70514
Posted
plus I hate that the only advice we get is loose weight or go on the pill..(which doesnt really help when you are ttc)
lynsey98423 clare70514
Posted
1.yes, sent me for scan when trying to get pregnant after a year to determine if I had PCOS but general knowledge / advice not great ..
2. Slow metabolism so struggle to loose weight & annoying irregular periods
3. No
4. Yes I developed gestational diabetes & high blood pressure while pregnant as a result of having PCOS( there are huge links here that no one ever told me! ) I'm at greater risk of developing diabetes type 2 later in life because of the PCOS .
5. I have always been anxious but recently have had panic attacks after having 3rd baby..
6. Yes to both
7. Yes in the days leading up to a period & feel adrenaline rushing through my body
Good Luck x
barbara82711 clare70514
Posted
2) Weight and excess facial & body hair.
3) Other than combined pill, Liraglutide daily injections for type 2 diabetes.
4) The only symptom that hasn't worsened has been acne. Everything else has remained, but I do feel my stress/depression has become worse when there is nothing in my life right now that should make me feel as I do.
5) Not panic attacks as such, but definitely anxiety attacks.
6) Have suffered stress/depression since my late teens. ( I first developed hirsuitism at age 12).
7) Only to a certain extent; in the 10 days before my period I become very anxious and agitated. But this relieves slightly when I start bleeding. All other times I tend to have an underlying tension/agitation and continually feeling emotional and weepy.
Hope this helps Clare :-) I am about to stop taking the combined pill and attempt the copper coil again.....my partner and I aim to be contraceptive free next year and take each day as it comes. xx
barbara82711 clare70514
Posted
I have also suffered from greater insomnia as i get older and have read various articles that would suggest this could also be due to PCOS and "insulin spiking". I truly feel dreadful!! My work means I am incredibly tired afterwards yet I cannot sleep. Falling asleep isn't an issue but I struggle to sleep longer than 5 hours per night. After night shift I can only manage 3 max!!! Has insomnia affected any other women with PCOS? If so, whats the answer??
Thanx xx
clare70514 barbara82711
Posted
ClaireR080613 clare70514
Posted
2. What two things are the worst part of your PCOS? - no regular periods (we are coming to that point in our relationship where we want children and not luck over the last year) and mood swings
3. Are you taking any medication including the pill? - no, I was on the pill Febriary 2014 - April 2014 but came off it because was making my mood swings even more irratic
4. Have your symptoms got worse as you've got older? yes
5. Do you suffer from panic attacks? - anxiety attacks used to be a regularity, havent had one in nearly 5 months
6. Do you suffer with stress/depression? yes
7. Have you noticed a pattern with questions 5 and 6 where it happens more at a certain part of your cycle? If so, which week/s does this tend to happen? yes, the week before I am due on and during
I hope this helps xx
Samber ClaireR080613
Posted
2. I had gestational diabetes and now have type 2
3. My metabolism is slow and I have excessive weight gain.
4. It did not occure to me till now that I ve been losing my hair since I became pregnant and it has been 17 years.
peppercat101 clare70514
Posted
2. Weight issues and sleeplessness
3. Yes, Glucophage, staminagro, antagolin, omega pills
4. I was diagnosed 5 months ago, but as I read the symptoms I realized ive had it since I was young and it has been getting worse
5. I used to
6. Yes, severely
7. I havent paid that much attention