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Hello ladies, first of all let me just say how happy and comforted I am when I found this website as I am in a great need to talk to people with similar experiences.
I am 23 year old female, never been sexually active, non smoker or drinker. I eat healthy and excersice whenever my pains from hell allow me. Three years ago in March, I was rushed to the hospital via stretcher in an ambulance and spent an entire day in the hospital. I had severe abdominal cramps that were nothing I've experienced before. These cramps were excruciatingly immobilizing, pain radiated to my back, and all the way down to my legs I was beyond weak I couldn't stand on my two feet they felt like two pieces of thread I had to literally drag my body to the bathroom I had a slight fever I was dizzy and nauseous I was fainting too and I threw up like there was no tomorrow.... Infact I began to think that was the end for me
In the emergency room, I was swarmed by nurses and doctors, tests, x-rays and even an ultrasound were performed on me that is after I was dozed several times with morphine via an IV
Long story short, they found NOTHING that day everything came out better than normal, so the conclusion of that visit and many others that followed was simply a painful period and sometimes brushed off and blamed on endmotriosis. I have seen three Gynecologists and each one was worse than the other, they all put me on treatments (hormonal/contraceptives of some sort or another) which managed to make me feel worse and my symptoms too. I quite all of them as well as the hope to a healing cure.
My last stop was an Endocrinologist, whom I saw for the first time two weeks ago and within 15 min of our session he said: "I am almost certain you have polycystic ovarian syndrome"...... I wanted to cry I really did, he requested a hay of tests and I did them ALL and now I'm waiting for the results to come so I can go see him and see where to go from there....
I told him I have acne, irregular cycles sometimes, my hair has fallen out and thinned generally no bald spots, I'm extremely moody, I cry for absaloutly no reason and I experience mood swings frequently, I often become incredibly anxiousabout everything and anything regardless of how pethatic and easily frustrated and irritated too. I have gained some weight particularly in my abdominal area and I find it hard to lose weight as if my metabolism had waved bye to me forever. I experience a severe sense of fatigue two weeks before my period, during my period and up to three to five days after my period. My menstrual cycle remains a plague from hell, aside from the other symptoms I mentioned earlier I should also add that I have few hairs growing around my nipple area, I have a bit of a dry skin not severe or anything, I have this brown pigmentation on one of my breasts, I also-ran experience insomnia regularly and days close to my period I have this feeling that takes over me a feeling of general unwelness I know that's not a word but that what I feel and I'm cranky and I have pain and my apetite is a bitch because I just can't eat and if I do just a bit otherwise I feel sicker. I've been prescribed Oxycodone (percocet) and Morphine to take when my cramps are too severe, I've been going to the ER way too long for period cramps which seems stupid right??? I got tired of it and I'm sure the folks in the ER have as well. Everytime my bloody period is about to start I look like I'm in labour and I sound like I'm in labour too and I swear I can not help it the pain I experience sometimes a whole week before my period and during my period is so bad so excruciating so severe it makes me cry and makes me wish I cease to exist
Everytime I go for a painful ultrasound they tell me no cysts were found and I look at all the pain that I experience and I just don't get it, my endmotriosis is invisible unless I go for a laparoscopy just so they'd confirm whether I have it or not but even the supposed treatment for endmotriosis that my gynecologist put me on my body seemed outraged by it and seemed to fight it and resist it and just made my symptoms worse!!!!! And my endocrinologist says that is all because of PCOS... Does anyone here think he's right? Anyone here been in a similar situation? Have you been diagnosed with PCOS, even if according to the doctors there were none detected in the ultrasound?? I'm at a loss here :'( am I crazy?? Will I ever get better??? Is there any hope for me? Am I the only one going through something like this?
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