PE follow up

Posted , 6 users are following.

Hi I got disagnoised up a PE back in November however I ended up back in hospital last weekend they thought it was another however they did not find another PE after speaking with doctor on the phone this week he said the following if you was 50 an this was your first clot then u could get a full body ct to check for cancer this has really been playing on my mind as I am constantly sick and feel it’s wrong that I will not get the best care due to my age (25) has anyone else had the same happen ? 

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  • Posted

    Sometimes I think the reason we get so many answers is because they don’t have a clue. I’m feeling a little upset with Drs this week. My niece was mid dignosed with depression for over a year. She continued to loose weight not being able to hold anything down. Sure she was sad her dad has died but not to that extreme. Finally her mom took her to a blood specialist in PA and found she had Scoleoderma a rare skin desease that attacks the organs. Her digestive system was shutting down. This week it starved her to death.  She will be creamated tomorrow.

       Another friend had PEs and was on warifrin then got DVTs in both legs. They went to both lungs and we almost lost him. Praise God he is home now doing better. 

       Now you know why I worry. I dropped one of my knives on my foot and cut 2 of my toes. I’m not bleeding to bad but every time I change the bandaid it starts bleeding again. I’m still on my Xarelto. 

    • Posted

      Oh god that’s so sad hope your ok it’s scarey Cos they miss diagnose a lot of things hope your ok x
  • Posted

    I found the article you referenced interesting re/faster diagnosis & cancer link.

    I'm 66 and was diagnosed with a PE within 40 minutes of arrival at my local community hospital. I had a Lovenox shot & heparin drip within 50 minutes, which may have saved my life. I also had a follow up full body CT scan and blood work to ID tumors, as well as genetic links, clotting disorders, etc. ordered by my hematologist. Now that I've read that article, I so appreciate how thorough my specialist was in treating me.

    I still get residual pain--I had it today and it always scares me. It's sharp and feels way too much like the pain I had the night I went to ER. BUT, the big difference is I can take in a full breath without pain and the level is much lower. I'm learning not to panic every time it returns...but, if I start getting short of breath or the pain increases, I won't hesitate to go back to ER and have it checked.

    • Posted

      I have now been refered to an investious disease doctor but it’s in the cancer centre I don’t understand why x
  • Posted

    My hematologist is located in a cancer center, too. Don't let that scare you.

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