PE just diagnosed

Hi Krista. It is really scary when you leave hospital. I was diagnosed in August. Doctor told me could be 6 months to a year to recover. Take each day slowly. I have found my body tells me when to stop. Some people are lucky and recover sooner. I am 64. You are young. Good luck. x

Hi Krista, yes it's scary, I am sorry you seem to be going through this alone. Here you are NOT alone. We have ALL felt what you are feeling.

I have been treated for asthma too. One day the shortness of breath just got to bad and so I went to the ER if it hadn't been for a great Drs assistant ordering a cat scan they would have just given me a brething treatment and sent me home. They saw my huge PE in my right lung and started me on my blood thinners.

Now I know we can expect good days and bad days we can expect days where we just want to curl up in a ball in bed and days where walking slowly we can make it the whole day normally.

You have several friends here. You never have a dumb question, and any time something good happens share it we need hope too🙂

Everything you are feeling is normal and will get better in its own time. Don't rush it. Trying to stay calm will help the shortness of breath. I found bending at the knees and not just bending over helps me most.

Hi Krista

It is scary but this forum has been so helpful and you are among friends.

It varies on how long it can take to recover as everybody is different, just listen to your body.

I was diagnosed in November with large PE's in both lungs, I try and do a little each day and listen to my body. 

Take it slow. it will get easier and ask anything you want to.

Take care

Debby x

Hello , I was diagnosed in July 2015 , how long i had , had the mass of blood clots on my lungs i do not know as i was breathless weeks leading up to then , my own GP didn't notice it but when i was still not feeling great i went back to my surgery an was given an emergency appointment with a locum GP early afternoon by late afternoon i was in A&E as the locum ( he is what they call in the UK  a doctor that comes to the surgery when a regular GP takes a holiday - basically a locum GP covers a GP's holiday in a surgery ) was concerned , CT Scan revealed blood clots , further CT Scan couldn't locate where they came from an because of that when i saw the consultant later that year he discharged me to my GP telling me that it would be up to my GP an me if we decided the following July ( 2016 ) whether i would come off blood thinners or continue with them , he said that if i came off them , then the blood clots would very likely return , last July my GP an i talked about it an we decided that i would have to stay on the medication , i am on my 3rd type of blood thinner as Warfarin - the most common one wasn't working for me as my readings were all over the place , 2nd blood thinner made me sweat , clammy so was put on a 3rd blood thinner , you tend to adapt to how the blood clots have affected your body , we are all different , i did get frustrated at how tired i got just doing a easy task like getting up to close the curtains but you just take a day at a time , i am 53 an i had been very active in my younger days but i got arthritis in both of my knees in my mid 40's so i know even before i got those PE's i was limited to what i could do , it can be alarming especially if like me you don't smoke , etc but you will adjust to it so please don't be worried an take care xx

Hello,

I am new to this site. It's so comforting to read the stories of others who are experiencing some of the same issues. I had surgery on Feb. 2, 2017. Was supposed to be same day but ended up spending two days in the hospital for obaervation. After being released from the hospital, upon KY second night home I was experiencing shortness of breath and chest pains. I was very alarming. I wasn't sure if I was having a heart attack or panic attack. Had never had neither. Thought maybe it could've been my hormones from where I had just had female surgery. Anyway, long story short, after contactingredients my OBGYN, she suggested that I go to the ER bc of the chest pains. EKG was normal, chest x-Ray was normal but a Chest Scan showed a tiny flit in my right lung. I was admitted and put on a Heprin drip, told not to get out of bed, until the next day when they let me go to the bathroom. This was a very scary experience. !! One doctor thought the clot looked old but all my testing to see if I had any hereditary disorders or susceptible to clots came back negative. Aftet 3 more days in the hospital I came home...working to say the least. I am a Christian and I know my trust should be in God and not worring. I also had an echo done and they told me that my RSVP number was 52.6, in which they were concerned about. Just 6 years ago it was only 19. They said I could have Pulmonary Hypertension. Honing to repeat Echo and chest x-Ray in 7 weeks. However, I know it's only been a month but they tell me to just try to get back to my normal life. I am still having chest pains on both sides at times, without even doing anything. Also pain in my upper back. Anyone have anything similar going on..is this normal. Thank you all for sharing your stories, the ones I have read our helpful

Hi Krista,

Please don't apologise, your language skills are brilliant. Sorry to hear that

you have had this problem and at such a young age!

A month ago I too suffered multiple clots but only in one lung, I was only

Overnight and discharged on a drug called Apixaban. I was recovering

quite well until last week when I was admitted with a lung infection, I'm still

in hospital at the moment but doing ok.

I was very depressed initially but have tried organising some things to look

forward to and although it was a shock it just takes a bit of time to accept

this has happend. Think happy thoughts, take one day at a time. I wish you

well with your recovery. Take care. This is a great place to get advice and

support.

I had multiple blood clots in both lungs the last scan they were still there but signs of dispersal. its know a year on but my asthma has been bad lately proberly due theclots damaging my lungs. they say a year is about the right time for them to all go so i am waiting to see. the blood thinners just thin your blood but your body has to break the clots down and disperse them.